Tag Archives: France

What future is there for NHS?

Food for thought

~ for the Future

The current malaise in the NHS is dragging patients down.

They say they are fed up with nurses and doctors looking grey, over-worked and dispirited.

  • And even more fed up with longer waiting times,
  • being told the post-code lottery means they don’t get a drug,
  • or shuffled laboriously through the system to get what should be simple tests.

It is OUR NHS – isn’t it about time we said “enough is enough”?

 

Brave Soul

Dr Kailash Chand, a GP in the north of England, has started a government email petition.   If he gets 100,000 signatures, this automatically  forces a debate in Parliament on the Health and Social Care Bill.

No doubt his bosses won’t be pleased with him (the Dept. of Health doesn’t like those who speak up), but if you want to support him click through to

https://submissions.epetitions.direct.gov.uk/petitions/22670

 

What else?

It is time to challenge the myth/mantra repeated time and again by NHS staff – French care may be better but it is more expensive.

When you compare like for like (i.e. if you take out of the equation all the private rooms, home care, massages etc. the French receive ) and work out who pays what – the French and ourselves are paying pretty much the same.

Perhaps we could go back to a report, written in 2008, for the think tank Reform.  What Prof.Nick Bosanquet, Andrew Haldenby, Laura Hurley, Flavia Jolly, Helen Rainbow and Prof. Karol Sikora wrote is worth re-reading, as a basis for patients to challenge just what is the NHS and La La doing with OUR  money?

The typical UK patient  pays around £2,250 per individual per year, so that everyone is covered by the National Health Service.

So the thoughtful report should be required reading for Cameron and Lansley;  instead of repeating “European healthcare is better”, and leave it at that – perhaps instead of devising all his time and money wasting plans, Lansley would take on board what the Reform Report says – and ACT on it.

So why change?
Over many years, Reform says academic studies have pointed to a gap in performance between the UK and other countries.

Health outcomes are difficult to measure, but the UK delivers a poor level of social equity despite having universal provision.  Other countries have systems that rely on part tax funding – part personal insurance funding for health care.

International options point to two key conclusions:

1.    Drawbacks of voluntary coverage concern both effectiveness – due to the problems of adverse selection – and equity. The only major developed country which operates voluntary health insurance is the USA, and that country is itself divided as to the wisdom of the policy. The NHS does provide cover to every UK citizen (although not for every condition), and that is a valuable strength.
2.    In recent years new insurance-based systems, in particular the Netherlands, have been created. Systems with strong insurance characteristics, such as France, Germany and Switzerland, are reforming in order to manage demand and continue to deliver a better standard of healthcare than the UK. The UK looks out of line with global developments.
The Prime Minister claimed that the NHS was “the best insurance system in the world” because, in systems with greater insurance elements, the costs of healthcare could bankrupt families on normal incomes.

Reform says people living in countries such as France, Germany, Switzerland or the Netherlands have the same kind of protection as the Prime Minister described, including cover against the very high costs of catastrophic illness. The task for the NHS is to combine its universal base with the focus on the patient evident in other countries.

Insurance incentives have the following advantages:

> they provide reasons for individuals and authorities to value the long term;
> they achieve greater value;
> they incentivise individuals to participate in their own healthcare;
> they remove unequal access to treatment; and
> they de-politicise healthcare.
Insurance-based systems are closely focused on individual patient outcomes as healthy patients cost less. This means a focus both on general well-being and on ensuring customers that do become ill recover in the shortest period of time.
In other words, an insurance-based health system encourages preventative medicine – something sadly lacking in the NHS.

Ending the postcode lottery
In insurance based systems patient entitlement is defined, and patients are aware of what drugs and treatments they have access to. This empowers patients and makes the system inherently patient centred, and would overcome the current difficulties in the NHS where some patients in one area have access to treatment while other do not.
The key elements of insurance success
We have seen the advantages of insurance incentives. However, there are a number of crucial elements that are required to make an insurance system work.

Firstly, it is important that a sufficient range of providers are able to operate in the market. Secondly, the core system of compulsory insurance needs to cover the vast majority of health problems to ensure that it is for only a minority of conditions that people are buying healthcare for through self-payment or supplementary insurance. Thirdly, people have to be incentivised to prevent abuse of the system. Finally, information and capability to use that information must be present.

Incentives to stop abuse of the system
People may have an incentive to abuse an over-generous system of provision.

In 2004 the average French GP prescribed drugs worth €260,000 a year and the French used three times as many antibiotics as the Germans.  The French have tried to tackle this problem of overtreatment by requiring co-payments for many drugs and GP visits.

One academic has estimated that between 20 and 30 per cent of healthcare funds in America go toward unnecessary treatments which can in fact have a detrimental effect on public health.

UK families already spend £1,600 per year on healthcare
Reform research shows that the average household invests significant amounts privately on their own health. At a conservative estimate the average household is spending £1,200 a year privately on core areas of healthcare, including private hospital treatment, dentistry, optometry and over the counter medicines.

Alongside this spending individuals are also spending a considerable amount a year on improving their own lifestyles through diet and exercise.The average family spends around £400 annually on areas such as gym and sports club membership as well as complementary therapies.

The basic healthcare package in France, which includes the cost of social security contributions and the cost of a basic supplementary insurance, is £2,021.46.

This is a comprehensive package which covers the cost of consultations, pharmacy, dental costs, surgical costs, hospital stay and ambulatory transport amongst others. Furthermore, the French state currently guarantees patients access to all cancer treatments, including experimental ones.

The option to top up for luxury services or rare drugs
Supplementary insurance would cover a wider range of health treatment and pharmaceuticals that are not available in the core package. Supplementary insurance could be purchased for an additional charge from the Health Protection Providers.

Based on supplementary insurance in other countries, examples of cover might include:
> Additional surgery e.g. additional eye surgery during a cataract operation to alleviate the need to wear glasses.
> Drugs not available in the core package.
> A higher standard of hospital accommodation, such as a private room.

Competition
An essential element of a system that acts as an insurer is competition. Competition drives efficiency and quality of services for patients.   However, competition has to be on a level playing field, and signs are that current plans for commissioning services won’t take into account all the factors.

Role of government
Now, this is where it gets interesting.  I can never understand how a politician, with no training whatsoever, can suddenly find themselves managing a health budget of billions.  No company would run this way.  Yet the NHS expects a rookie Minister to know how to commission health services.

Reform suggests the role of the Government would be considerably reduced.

It would have a regulatory function to ensure that all Health Protection Providers and service providers were of sufficient quality. Further tasks would include allocating contracts for emergency services and deciding the budget of the service on a five year cycle. The reduction of this role would eliminate the need for regional agencies i.e. Strategic Health Authorities.

This would depoliticise the running of the health service, and remove it from the political cycle.

The authors
Nick Bosanquet is Professor of Health Policy at Imperial College London and Consultant Director of Reform.
Andrew Haldenby is Reform’s Director.
Laura Hurley was an intern at Reform during the summer of 2008.
Flavia Jolly was an intern at Reform during the summer of 2008.
Helen Rainbow is Reform’s Senior Researcher specialising in health.
Professor Karol Sikora is Medical Director of CancerPartnersUK and a consultant in cancer medicine.

Report costs:  £20.00
Reform, 45 Great Peter Street, London, SW1P 3LT
T 020 7799 6699
info@reform.co.uk
www.reform.co.uk
ISBN number: 978-1-905730-12-4

Carol Smillie and using seaweed to zap spots

 

When spots make your life a misery, simple

seaweed can offer help

Undergoing cancer treatment, some people are incredibly lucky.  The drugs they take dry up their skin from inside – making spots shrivel up and disappear.

For others, the spots go on, and there seem to be a constant supply of new zits and blackheads making life a misery.  For some even unluckier people, they suddenly develop crops of spots, and can’t get rid of them.

There is hope

Scientists have discovered a new use for seaweed, and it is helping clear up skins that suffer from these nasties.

Recently Carol Smillie and her daughter Christie were showing off their skins after using the new seaweed-based Oxy products to help control spot outbreaks.

Oxy Tube with fresh looking packaging

Produced by the Mentholatum company, (makers of Deep Heat and Regenovex), their scientists have been harnessing seaweed off the shores of Brittany, as a basis for the Oxy range.

Now Oxy products are being sold in major chemists – alongside their topical gels  such as Deep Freeze and Regenovex.  These do a good job of helping relieve pain and help mega-precious footballers – and cancer patients with aching joints.  So the ‘stable’ is a good one.

Dealing with Spots

We all think acne is something we get in our teens, and hope to grow out of.  Now, this company own the OXY brand of topical skincare treatments, designed to tackle spots, blackheads and excess oil.

For those of us with cancer – spots can be a horrid reminder of our teens as the spots make their unwelcome appearance again.

Seaweed – is this the new miracle ingredient?

Scientists are now using new methods to combat spots, and and a lot of research has gone into using seaweed to combat these nasties.

As a plant, I have been watching seaweed for some time;  it is probably the latest ‘miracle’ ingredient, judging by the uses companies are finding for those long tendrils.  A friend living in Brighton gathers the squishy brown tendrils when she goes for shore walks, then brings them home to add to her bath.  Soaking in the warm, seaweed infused water certainly gives her a gorgeous skin.

This time it is the Laminar or Laminaire (below) variety of seaweed the scientists are using, and also a type of brown seaweed that is helpful – but to get the benefits you need to do a bit more with it than just soak in the bath.

Those clever people at Mentholatum have been working with this at a works by the seashore in Brittany, France, and have now come up with Oxy skincare products that have proven very successful in trials.

I suppose I am lucky – my skin just dried out from cancer drugs, but sitting next to me at the Oxy product launch was a friend who had had  horrendous spots as a result of cancer drugs, and she was saying what a benefit it had been.

Celebrity Trials

Another one who is keen on this product is Carol Smillie, and her very pretty teenage daughter Christie.

Carol says “the fact that some of its key ingredient properties come from seaweed ……. I much prefer the thought that as a mum, my daughter is using a product which uses ingredients from nature.  My daughter is a normal teenager ….. loves to wear make-up ……  Christie’s been using the new Revitalised Oxy ranged for several months now, and it really has the desired effect”.

Oxy skin preparations contain several active ingredients, including Phycosaccharide – harvested  from brown seaweed along with others from the coast of Brittany.  According to Dr. Carrie Ruxton, this is also a rich source of potassium, sodium, magnesium and iodine – plus also being a good source of anti–inflammatory omega-3 fatty acids.  She has been working on a double-blind randomised and placebo-controlled trial at the San Gallicano Institute and Acne Clinic in Rome.

As a result, Oxy has developed a brand new Oxy range, just launched in major chemists.  More info:  www.oxy.co.uk

 

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Elemis provides emergency rescue for rough skin patches

shower head

Image via Wikipedia

Elemis got big by bothering

 

~ about showering

 

Amongst the ‘big boys’ from USA and now France, the British skincare company Elemis is making great strides, particularly when providing creams that help with problem skin produced by drug side effects.  Once we had so many companies:  Cyclax, Yardley, etc., but now most seem to have been absorbed into other companies.  Instead, to take their place comes Elemis.

For some time I have been using their products to help with scaly skin, rough patches and itchy dry skin, and each time they have come up trumps.

Latest in their line of helpful products are a range for baths, which have been helpful with zapping patches of dry skin.  Don’t know what it is, but every time the docs. put me on a different drug, my skin tries to burst out.  So rescue remedies are called for – and these have been very helpful whenever I shower:

Note:  all prices are regular prices, but currently Debenhams have an Elemis sale online.

 

Tranquil Touch Body Polish

Gentler than a body scrub, it still does the job of getting rid of rough patches.  Might be because apparently contains ‘a natural rice exfoliator’.  Well, you live and learn, but it is very helpful.  £16

Tranquil Touch Creamy Body Wash

Does just what it says on the label, and my bottle has lasted – so I don’t seem to need to much when I shower.  £18.40

Cellutox Active Body Oil

During what little summer we had, I became lazy and didn’t want to spend minutes massaging in body butters or lotions – so went for oils, and this Elemis one is a treat.  It has kept my skin moisturised, so when we had what little sun we got, I didn’t need to put on after-sun cream because my skin was soft enough.  £27.70

And finally, amongst one of my ‘goodie bags’, was a little bottle of their Quiet Mind Temple Balm. I take it into meetings, place it in front of me, and just looking at it soothes me.  Talk about mind over matter!!

Think Pink Beauty Kit

And Finally, every year Elemis produce a goodie bag exclusively for  Breast Cancer Awareness month in October.  The company are massive supporters, and pledge £10,000 to help continue their incredible work that offers support and information to anyone who is affected by breast cancer.   So look for the bright, brigh pink bags on beauty counters, and help the charity.

www.timetospa.co.uk

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Oils are nature's oldest beauty secret

Almond blossom

Almond Blossom Flickr

The problem~

that turned into a present!

 

It was a friend’s birthday, and I wanted to get her something Provencal, as that is her favourite part of France.

I had written about L’Occitane products in the past – so thought a box of their gorgeous ‘goodies’ was the right thing.

But nearly an hour later I was beginning to regret my decision, as their website just wouldn’t accept anything I inputted.  It was just behaving as websites can do – but IT guys swears never happens.

Worried that I might have inadvertently set all sorts of dire things in motion (such as multiple orders) I phoned them next morning.  Got through to Joelle, who was a genuine human being, not a call centre.  She was incredibly efficient, anxiously talked me through the process and assured me that they were very, very sorry.

Two days later, the postman delivered a lovely box of goodies from L’Occitane, with a delightful letter of apology from the ECommerce Manager (not an ‘executive’) Gaelle Debauge.   This was really old-fashioned service, and I only wish some of the other companies that have website problems would copy their kindness and efficiency.

Why can’t doctors help with our hair?

They say women’s hair is our crowning glory – well, after cancer this couldn’t be further from the truth.  Each Dermatologist I meet up with, I ask what can I do about my ‘druggie hair?’  They all look bored.  I even found out this week that some of the drugs we are put on actually leach out our hair colour.  I couldn’t work out why my mousey-blonde hair was colourless;  thought it had gone white, but realised it was just a faded version of my normal colour.

Reading an information sheet included in a Sanofi-Aventis drug, this said that one of side effects was loss of hair colour.  How French !  Of course being a French drug company, where the medical profession cares much more about women, they included this vital piece of information – why do French pharma companies bother about women – yet the British  couldn’t care less? I still smart when I remember the patronising NHS dermatologist who told me, “try a conditioner”;  this was the only suggestion he could make,  as if I might never have thought of this.

Now the good news – Oils can help

L'Occitane Shower Oil

Amongst the goodies L’Occitane sent me was a lovely Almond Shower Oil.  I had to wash my hair, so tried my current trick of rubbing some oil in first before shampooing;  my ‘straw hair’ feels better already.  Although the oil was supposed to be for showering – it did the trick!  Since then I have used the Oil as a a shampoo, and my hair is much softer.

Now I know that worked, I am off to their shop near me to check out their range of oils.

Next time I will rub their oil in before I go to bed (it doesn’t stain my pillow provided I just rub in a little);  then, when I shampoo my hair the next morning, it’s much softer.  If I really want to make it shine, or am going to be out in the sun, I pour a little oil on the palms of my hands, and smooth this over my hair, and it glistens!

The company has several outlets in Britain, or you can order online (Joelle promises it was only a temporary glitch!)

You can order on QVC, or go to www.loccitane.com/uk

 

 

 

 

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Kylie bursts in to tears

Image created of Kylie Minogue during the Show...

Image via Wikipedia

Her brave face falters


It gets to us all in the end.  Brave Kylie Minogue finally burst into tears and ran off during a TV interview as she spoke about her battle with cancer.

Diagnosed with breast cancer in 2005, she has finally reached the magic ‘five years’ milestone, but during a TV interview, she was overcome as she was describing an incident that happened to her during her struggle to beat the disease.

Interviewed by close friend ‘Molly’ Meldrum on Australia’s Channel Seven Sunday Night show, she had to leave the set, and compose herself away from the cameras.

But well done her for not succumbing to the usual ‘celeb’ creed of  ‘let it all hang out’.

http://www.dailymail.co.uk/tvshowbiz/article-1363518/Kylie-Minogue-breaks-talking-traumatic-cancer-battle.html

Haven’t we all cringed as someone has cried on camera – but Kylie refused.  Eventally she came back on set, according to those watching the Australian television programme Sunday Night.

She had been talking about an incident during a visit to a children’s ward, when she had been cheering up a young cancer patient.  The parents then asked her “how are you?”, and whilst reporting this, Australian press said that she became upset and struggled to speak.  The visit to a hospital in Melbourne that she was describing had made such an impression on her.

Humanity

With any other pop star, cynical thoughts would be around.  Kylie has just started a mega-tour event, Aphrodite – Les Folies Tour 2011, and it might have been thought that this was put on for publicity.

When Kylie returned, she said: “The greatest part of my job and what I do is the humanity of it and there’s certain moments where that really cuts through…  I’m so ‘go, go, go’.  “I hadn’t really had time to give a thought about that until I was telling you.

“It just stops me in my tracks. I hadn’t thought about that since then.”

She paid tribute to her family, saying that they had helped her through the “really rotten, dark moments”.  Recently she has also done a lot to say thank you to the team in France that treated her.

Breast Screening

However, it has been thanks to the ‘Kylie effect’ that many younger breast cancer patients have now been listened to when they try to tell their doctors they think they have breast cancer.  Many under 40s will confirm that their doctors pooh-poohed their fears, telling them “you are too young to have breast cancer,” until Kylie’s diagnosis showed that it wasn’t always only older women who got the disease.

Even Kylie herself said that at first she hadn’t been listened to – it was only when she went for a second opinion that her fears were confirmed.  But thanks to her, untold numbers of younger women have been listened to – and hopefully had a better prognosis.

So she is now touring with what looks to be a fantastic tour, so if you want tickets in your country, go on to Google and grab them quickly – they are bound to be a sell-out!

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New book explains breast cancer treatment

BREAST CANCER NURSING – Care and Management


This is a text book, written for nurses, full of medical jargon – but if you are interested in what happens to you as a person with breast cancer, I can thoroughly recommend it for reference.

This is the type of book it would be helpful to have at hand, when the expert medics start discussing you as though you weren’t there;  the helpful index at the back would show you what they are talking about, and you might even be able to contribute to the discussion!

I met Victoria when I went to St. Mary’s, Paddington (where Alexander Flemming developed penincillin), and it always gives me a thrill when I walk under the blue plaque that records where he worked.  Vickki is one of those people whom you warm to immediately, and not surprisingly she has managed to gather together a very interesting and informative collection of colleagues to contribute chapters.  Each one is writing about their specialist subject, to be read by their peers, so the language can be very technical.  However, you know you are getting the truth, which can be extremely interesting when you work your way through to it!  I found several answers to things that had been puzzling me.

Anyone bewildered or unable to find answers to questions could well find the solution in this book.  I turned first to the chapter on Endocrine treatment, and it says “logical answers aren’t always the correct ones and assumptions cannot be made…”.   Hurrah – someone knows we don’t all respond in the textbook manner to those drugs.

If you have problems with side effects, the book has examples of many that are brushed aside by medics,  One is that women aged over 80 can have had hot flushes from Tamoxifen;  showing this book to sceptical medics might make them believe what we tell them.

Another chapter speaks of ‘Time spent with a patient, listening to her story is very valuable’, etc. etc.   I would dearly love to have this printed out and put it in every nurse’s locker.  Today, almost all the time we get with a nurse can be her asking what medication we are on (which they should have  gleaned from out notes – if they read them).  So we waste valuable time, which is often the only allocation we get – no time to tell staff of our fears or ask questions.

The only subject I would have liked to have had more cover is Hormone Therapy, and in particular dealing with side effects from the drugs.  Vickki works at St. Mary’s, Paddington, and I know that they have had contact with France and some of the solutions French doctors have for dealing with these – so next time I would like to see a chapter dealing with how the French treat these.

But there is so much of use to anyone who has problems – most patients would probably be like me:   looking  for the aspects that interest them, and I don’t want to know about the rest.  But what is there has been written by a team of experts, ably edited by Vickki, and this will certainly be on my desk and surely well thumbed.

Published by Wiley-Blackwell £29.99

www.wiley.com.wiley-blackwell ISBN   978-1-4051-9866-0

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Doctor suggests easy solution to problems of mixed sex wards

There is an easy way to get this sorted once and for all

Writing in The Daily Telegraph, Dr. Max Pemberton suggests one way to banish single sex wards is

“those in the upper echelons of trust and hospital management to ….risk personal financial loss when policies are not adhered to.

I suspect if that if this were the case, managers would suddenly start taking a very active interest in exactly what was going on….. and come up with some innovative ways to solve problems”.

Pemberton works as a hospital doctor, so obviously knows what is going on – and says “They might also start to see that closing wards creates more problems than it solves”.

As he rightly points out, Andrew Lansley’s current solution to fine hospitals will penalise patients, as the fines will come out of hospital budgets.  Leaving less for treating patients.

Our local foundation hospital is particularly prone to mixing sexes, and earlier this year a Priest friend phoned to say that he had had an awful experience whilst a patient.

He was frail and elderly, and had become used to the hospital putting him into a mixed ward, whatever the time of year and however much he complained.  This time he had returned to his bed at 3 am, only to find a female patient installed there.  He went to ask the nurse to do something;  all she did “was roar with laughter and say, ‘you should be so lucky’”

Apparently this patient was known to do this when men were moved into the ward, but no-one did anything about it.  My friend was upset, and complained of being bullied, “it took me a long time to get the nurse to do something”.

It is bad enough for us, but imagine what gossip this would have created amongst his parishioners.  And shows the bullying that goes on with old people.

Andrew Lansley says he is going to abolish Mixed Sex Wards.

Listening to NHS spokespeople tie themselves into knots to justify  why they can’t do this, one just wondered if any of them had actually bothered to think this through, or if it is too much effort to get these sorted out?

And whose bright idea was this originally?  When Florence Nightingale was around I don’t think she would have allowed it.  Then along came Matron – boy, would she have exploded!

But the bright boys that got rid of Matron allowed CEOs to come in with their ideas to save money.  And not having to bother about searching for a bed in the appropriate ward – think how much time that would save them!

No-one consulted the ‘customer’, ‘stakeholder’, ‘consumer’ etc.

When we lost the name ‘patient’, we lost all our dignity.

Solution?

Why can’t the nursing station be placed in the middle of large wards with bays, as a barrier between male and female patients?

If the station formed a division, one side could be for males – and one for females.  It would just mean turning the desk around so that it was at right angles to walls, rather than parallel, so that only staff could go through to either side.

Then it would need committment from the ‘bed allocation team’ or whatever they are called.  They couldn’t  just slip next patient into the next free bed – they would have to search for a bed in a male/female ward.

If European hospitals can do this – can’t see why we can’t.

Next, re-label male and female toilets and bathrooms so they are on the appropriate side of the barrier (might need a bit of plumbing), and this would put an end to elderly patients coming out of mixed loos, often with clothes flapping and displaying everything to an audience of the opposite sex. And don’t tell us that just giving us separate male/female toilets is the solution.  It is NOT!

This system would still allow for dedicated wards for different conditions, but would retain patients ‘dignity and privacy’.

Does this happen elsewhere?

Mixed Sex wards (MSW) are unknown in European hospitals.  Asking a group of French if they had  these, they looked at me in horror.

“Why would anyone want to be treated in one?”  I was asked;  I could see in their eyes that they had me marked down as ‘sex maniac’.

It took some nifty explaining in my limited French to convince them that this had been a rhetorical question.  I was only saved by one of them admitting that she had done some training in a British hospital – and yes, they did have these strange customs.

Q & As

  1. CEOs of hospitals say ‘patients have only to ask to be moved, if they don’t want to stay in a mixed ward.’
    They haven’t actually asked patients, who say “I don’t want to complain – otherwise they will pick on me” .  This is told time and time again, particularly by elderley patients.    So will they tell their nurses not to take it out on patients who do ask to be moved?
  2. The NHS constantly talks of ‘dignity and privacy’.  What’s dignified about mixed wards?
  3. If patients have had internal operations, they often have embarrassing conditions and break wind afterwards.  Patient after patient has said how awful they have felt in a MSW.  So why do hospitals place them in these wards, if  ‘patients only have to ask……’
  4. Curtains give you no privacy when having intimate conservations with doctors.  When will doctors realise that anyone can hear what’s being said behind them?

Uncaring Staff

Going on the web, there is posting after posting about MSWs.  Many complain of patients exposing themselves, and nurses just laughing when asked to deal with this.

What now?

Vanessa Bourne and the Patients’ Association are campaigning like mad – so join up with them.  She admits her association “has had complaints for years”.  But NHS has ‘relied on tick boxes’ – presumably to say they have treated X number, but not in what conditons.

In 1996 Blair first said he wanted to get rid of MSW.  Wonder why it’s taken Dame Christine Beasley, the Chief Nursing Officer, so long to respond?  What did she get her Damehood for, one has to ask?

As usual it is going to be up to patients to lobby, complain, write and campaign – as if we didn’t have enought to do!

Incidentally, there are certain exemptions:  A & E and Intensive care units.  When you have been involved in an accident, all you want is to get something done quickly to start you on the road to recovery.  And having spent some time in an Intensive Care Unit, you are mostly unconscious so the thought of another patient climbing out of bed, with all the drips, etc.,probably semi-conscious, and climbing into another bed – is a bit bizarre!

Andrew Lansley has now formally announced that mixed sex wards are to be abolished, apart from intensive care and A&E wards, byJanuary 2011

Remember the date.  Lansley has gone very quiet on this subject reently, but am I being a cynic when I won’t place a bet on this?

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Cancer patients need pubs

Pub Sign, The George Public House, Southwark, ...
Image via Wikipedia

I am backing the Tourism Society in their campaign to save British pubs.

Why?  Even though I am teetotal? And a cancer patient?

Because the British pub out in the wilds of the countryside or in the middle of a city, is

  • somewhere we can always find a loo when we need one desperately
  • where we can get something to drink – and we all know we HAVE to have liquid regularly.

So as cancer patients we NEED them.

My favourite tipple is Ginger beer, but many pubs – particularly those in the country – can now supply a mean cup of proper coffee in a cup, not a paper beaker.

The Tourism Society says British Pubs are closing at a rate of just under 6 per day ! As a result, the tourism offering in many towns and villages is being seriously degraded.

Pubs have managed to survive the drink drive ban by diversifying into supplying good food.  Now, we are used to the ‘local’ doing great things with produce from local farms.  When we go to France we no are no longer envious of the good food in most villages, but instead are tending to compare the French bistro unfavourably with our favourite gastropub.   France is taking too enthusiastically to ‘boil-in-the-bag’, which is what caught out Gordon Ramsey when it was discovered he had turned a favourite ‘local’ over to this lazy way of cooking.

Pub signs are often sign-posts to local history, commemorating battles, or the local Lord.  One famous one is The George’s sign, which swings over the entrance to the lovely galleried Inn in Southwark, London, where Pilgrims gathered before setting off on the long trek to Canterbury.

The National Trust considers they are part of our heritage, and one of their most popular attractions is The Crown, in Belfast – always crowded.

The pub has gained an unenviable reputation for lager louts and drunken hen parties.  But if my community of Chelsea is anything to go by, pubs are gradually realising they make more income by looking after sober locals.  A pub that was notorious for hosting   Chelsea football club supporters has closed down, and the pub opposite Chelsea’s gates, where the club was founded, now makes more money as a gastropub for locals  than hosting supporters.

But out in the country, a pub can be such a welcome sight when out for a walk, and we would miss them if they weren’t there as a refuge from rain, somewhere to get something to eat when we were starving in the middle of a walk, or just because we were thirsty.

So follow my tee-total lead,  and sign the Back the Pub campaign. If you enter your postcode in the “Petition Your MP” box, this generates an automatic lobbying e-mail to your MP. Enter your details above and below the email box then click “send message”.http://www.backthepub.com/

Incidentally, I always thought we got the word teetotal from Regency days, when tea was very expensive, and only drunk by the rich.  Most people drank beer, which was less alcoholic than we drink today; but if you were very rich you sipped cups of tea.  Snobby people even boasted to their friends they only drank tea – they were teetotal.

However, Lee Le Clercq,  Regional Secretary, North of England, British Beer and Pub Association knows his stuff. He sent me an email to say “I liked the explanation for the term ‘teetotal’  however I hope you won’t mind me correcting you regarding its true origins.   In 1832 Joseph Livesey founded the Temperance Movement in Lancashire and regularly held rousing meetings in a Preston tavern called the ‘Old Cock Pit’.   It was one of his followers, Dickie Turner, who coined what was to become one of the most famous words to be connected with the Temperance Movement.    A reformed drinker and ardent follower, he was one day fervently advocating ‘total abstinence‘ when he is said to have stuttered over the word total. The result “t-t-t-total” was picked up by Livesey and very soon came into the language and the word teetotal has appeared in dictionaries ever since.     Thankfully, the Movement is still stuttering today!

So now I know!

And ‘one over the eight’?  As far as I know this came about from the Royal court that issued a ration of eight pints to everyone, from serving wenches to Ladies in Waiting.  Eight pints was considered sufficient;  drink more and you might become drunk, or be one-over-the-eight.

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Treatment in France

Map of France (wp-EN), with names in French
Image via Wikipedia

TREATMENT CENTRES IN FRANCE

www.fnclcc.fr is the website for the Federation Nationale des Centres de Lutte contre le Cancer.   It incorporates a page in English which details the work of the Federation and names the 20 cancer centres.
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Frances Wilkinson, Secretary of Cancer Support France, says they “will always support English-speaking people affected by cancer in France and you will have seen from the CSF website that we have branches of our organisation in many parts of France where there is a significant population of Anglophones.
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Incidentally, although I do speak French, and so do the people I mention in the case study below, a large proportion of French medical staff speak excellent English.  One darling doctor just grunted as he examined my skin lesions from Tamoxifen – and kept on grunting.  So no interpreter needed there, but he set in motion the treatment I had which cured my skin lesions;  lesions that had stumped doctors at the Royal Marsden in London.
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CASE STUDY : Medicine and treatment in France

You may decide to hxxll with trying to get the NHS top pay - you are going anyway and will pay.

Two friends who live down the street were surprised and pleased at how easy it is to get treatment in Europe. They knew I had been there to get help with cancer side effects, and were impressed.   So here, straight from the horse’s mouth, is what it’s like to go off abroad for treatment. Both had been passed around from one NHS pillar to another medical post, were fed up with years of waiting and wrong diagnosis, and just wanted to get things done. Now, they almost automatically book to go to France when they need treatment.

“When I wanted to find a prostate specialist when I had to go to Lyon, I merely googled :”Prostate specialists in Lyon” and up came various names, one of whom I called , got on to her secretary, and booked myself in. The cost was less than in London for seeing someone of comparable quality, I was seen immediately and laboratory tests were done on the same day, also at less cost, with the results coming through quite quickly.

When Robin had a problem with ingrowing toenails some years ago, we saw a French doctor within 10 minutes and the antibiotics were produced immediately, all at much less cost than here ( the doctor was in Paris ).

When needing a scan in Lyon, we booked up the appointment to coincide with our holiday in the South of France. No waiting, the scan cost £80 instead of £800 over here, and a doctor explained the results immediately afterwards in very good English. This was not on the EHIC (European Health Insurance Card) as it was pre-booked. However, further tests were done by my friend Dr Degraix, one of the leading ENT specialists in Lyon, and drops were duly administered for the infection which cured it in 7 days, whereas it had taken months of footling around in the U.K and we didn’t get anywhere.

When in France, we are always falling off rocks, pulling muscles diving into swimming pools, getting appalling stomach upsets after yet another 5 course Michelin meal, and always having to see a doctor or go to hospital to get cured. The results are always much better than in the U.K, cheaper and more effective.

It is also definitely worth comparing medical costs on a pre booked basis between here and France, and I haven’t seen or heard much about MRSA or whatever the latest bug is, but the French seem to have that under control”.

Warning! The French, like us, are getting fed up with medical tourism.  But they have the will to do something about this, so don’t imagine you can go there and present yourself at a hospital, claiming to have suddenly got cancer – it won’t work.

You will be treated well, then presented with a bill at the end – and there won’t be any way you can get out of paying.

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What I would tell Martina about handling cancer treatment

Martina Navratilova
Image by franz88 via Flickr

Martina Navratilova is going to France for Radiotherapy, but worries about burns

Martina has decided to come out in the open and say she has Breast Cancer. She realised she could help others by going public and raising awareness that early detection can help save lives

With her fitness regime, no-one would have ever suspected that she would get cancer.  The health gurus continually make us lesser mortals cringe, telling us our unhealthy life-style contributes to getting cancer – but Martina ? No, she would be the last person, one would think.  But cancer can happen to anyone.

But why go to France?  For some time the World Health Organisation has placed France at the top of the cancer treatment ladder.  And now, when she could be treated anywhere in the States, Martina has opted to have radiotherapy in France.

The 53-year-old, one of the idols of women’s tennis, told Reuters in a telephone interview from New York that she felt great physically, and did not expect her six-week radiation therapy course in Paris, during next month’s French Open, to get in the way of prior commitments.  One only hopes she won’t find that sometimes this treatment has a way of making one extremely tired…….

“My life has not changed other than I have to be in one place for six weeks to sit through radiation,” she says.   But…. she admits she is scared that the treatment will burn her skin.

France has probably the best post-cancer survival rate in the world – far better than ours.  I wonder if it is because their medical profession helps patients stay on life-prolonging hormonal drugs, by treating side effects, rather than brushing them aside?

In France, doctors work with skincare companies to develop state-of-the-art care that repairs the damage drugs do to our bodies; more than likely, she will be told to slap on Aloe Vera to prevent burns, or given an Evolife product designed to help with specific side effects from cancer treatment.

Evaux Laboratoires, that makes Evolife products,  is a French company producing

  • Evoskin = for dry face and body skin
  • Evonail = repairs cracked and broken nails from cancer treatment
  • Evoskin = red breast during radiotherpy
  • Evomucy = mouth ulcers (this was brilliant when hormonal drugs gave me horrible chemo-mouth)
  • Evodry – dry mouth
  • Evodeo = body odour (nurses delighted in telling me I couldn’t use deodorant when                                                         undergoing treatment – well, now we can).

Over the past five years Evaux have been supported by ANVAR (the National Agency for Development from Research) and part of Project Eureka in Europe. This  carries out research together with specialists in oncology and dermatology.

Evaux Laboratoires has created a Research and Development department called EVOLIFE to improve the quality of life during chemotherapy, by limiting specific side effects of some chemotherapy treatments, and providing solutions to problems patients experience with side effects.

At their conference last year they explained the on-going clinical trials that were taking place in French hospitals, and an Oncologist talked about how they were giving the appropriate cream, such as Evoskin,  to patients BEFORE they started treatment, to ‘prime’ skin.  This is a fantastic product;  the only one I know that you can use on your face and your body.  I didn’t believe this at first, but it works.

I gave some Evomucy to a friend who had mouth ulcers from chemo, and he said it was superb.

www.myevolife.co.uk

One of the best Aloe Vera gels is Equilibra – brand leader in Italy, which is now coming onto the market in UK.  It is 98% aloe vera (many cheaper brands contain much less).  It is the extract from this plant that costs – but makes it effective. Cost £6.49 (although one private hospital sells the 150 ml tubes for £12!).

Incidentally I always have a tube on hand in the kitchen. It is superb for zapping burns right when they happen as you are cooking, and preventing blisters.

Info: http://www.equilibra-range.co.uk Buy from : http://www.chemistdirect.co.uk

As she is a naturalised American, Martina may prefer to use American products, and at Washington Cancer Center they have developed and trialled iS Clinical products to help ‘cancer skin’.

iS CLINICAL® skincare has been offering help to people undergoing treatment for cancer, since launching the iS Cancer Care program at the Washington Cancer Care Institute, Washington, DC.

The program provides skincare solutions for patients undergoing chemotherapy or radiation treatments. It features a very special selection of iS CLINICAL® products that specifically address the unique skincare concerns of cancer patients. These products contain extremely powerful botanical antioxidants to protect against free radical damage, generated by the environment and as a result of certain cancer treatment therapy. Medical literature gives overwhelming support to using antioxidents during cancer therapy. They have been shown to improve the out come of cancer treatments and to reduce the side effects.

Alan Kelly, their spokesman, says “Our products also combine ingredients that strengthen cellular health and integrity such as vitamin B3 and green tea. We utilize proven cancer care preventative ingredients, and we offer the safest, most advanced forms of UV protection”.  Martina will have to use strong SPFs to protect against the sun, especially when she is reporting on tennis.

When attitude is paramount,  the iS CLINICAL® Cancer Care program offers hope and relief for those suffering with the effects of cancr treatments. Quality of life issues. like skincare concerns, are valid and real, and luckily for Martina US oncologists realise this.

Some products Alan recommends for differing skin conditions are:

  • Tightness & Pulling, Radiation Dermatitis we would recommend our Poly-Vitamin Serum which has intensive healing and rejuvenation properties.
  • Dry & Cracked Nail beds we would use Hydra-cool Serum, a light but powerful hydrating and soothing serum.
  • Scar Tissue: Super Serum Advance, reduces scar tissue and boosts healing.
  • Redness, Acne and inflammation we would use Pro-Heal Serum Advance, this formula is anti-inflammatory and reduces Erythema.
  • Dryness : Facial – we recommend Moisturizing Complex, moisturizes and offer a protective barrier. Cracked, dry skin on arms etc we use Body Complex, again offers a moisturizing action and offer a protective barrier.
  • Dark under eye circles, puffiness we use Eye Complex to lighten and hydrate the area.
  • Prevention and treatment of radiation burns our SPF25 treatment sunscreen to offer the ulimate UV protection

https://www.mbnsclinic.co.uk/store/

And whilst she is in France, the hospital will more than likely recommend that Martina uses products from the French skincare company La Roche Posay. At its ‘mother’ centre in the town of Roche Posay, they treat over 8,000 patients with skin problems every year.  They make a wide range of suitable products, which they sell at major chemists in over 80 countries. including John Bell and Croyden in Britain.

www.johnbellcroyden.co.uk

We all wish her well, and as a patient she will find a great deal of understanding and help over the side effects that are bound to happen as a result of radiotherapy, and when she will be put on hormonal drugs.