Tag Archives: iS Clinical

Eye problems when you are on medical drugs

Eye Problems

 

My eye

 

 

Many friends with cancer report having problems with their eyes.

I found it can be scary when Oncologists brush aside our concerns.

 

 

 

Tamoxifen

 

No-one warned me eye problems might be a side effect.   A week after starting Tamoxifen, when I woke up, all I could see was a greyish-yellow film across my right eye; nothing else.

 

Thinking the worst, I rushed to my Oncologist;  he told me  “I’ve never seen this before – I am sure it isn’t anything to worry about”.

 

 

Oh yeah?  The callousness of some medics defies belief.

 

 

Phoning Revd. David Brown, ex-Chaplain at the Royal Marsden Hospital, he told me “yes, a certain percentage of patients on Tamoxifen do suffer from blindness, but generally it disappears within two months”.

 

 

David was right.  So if he knew, why didn’t my Oncologist?

 

 

He recommended I went to see Michel Guillon, a French specialist from Nice, (and a devotee of Garibaldi (also born in Nice).  He had held a senior position at Moorfields Eye Hospital in London, and knew all about Tamoxifen – and he wasn’t an Oncologist!

 

 

Prof. Guillon said it is possible in a very, very few cases to get Tamoxifen poisoning, but this is rare.  After subjecting my eyes to a fascinating range of high-tech tests, he said in my case it wasn’t Tamoxifen poisoning, and eventually my eye-sight would return. Phew!  And he was right, but I still have eye problems but nothing like as serious as the first.

 

 

Aromasin

 

 

Eventually I was changed over from Tamoxifen, and ended up on Aromasin.  Same vicious side effects, but this time my eye was red and painful, and I needed steroids to stop the pain.  Several were tried, but the one that worked was Dexamethasone (Maxidex).  This worked extremely well, and I was soon able to stop taking Dexamathasone.

 

 

Once the course had finished, I was recommended to use Rohto, an over-the-counter remedy,  and now, if I feel a recurrence, I just use Rohto again.

 

 

Behaving like children

 

 

What shocked me when I had problems with my eyes was the attitude of doctors.  We only have two eyes, so they are very precious.  If one goes, the other could be lost in an accident – and then where are you?

 

 

Seeing the Oncologist at the Cromwell Hospital, and him saying he had never seen Tamoxifen causing blindness was incredible.  He must have read up the original clinical trials, as the Chaplain had done.

 

 

Then when the second eye problems turned up, again I was shocked at the way the eye specialist I ended up with at the Royal Marsden was so dismissive of Prof. Guillon.  Later I took the greatest delight in sending an email with information about the well-documented research and papers that Guillon had produced.  On my next visit the specialist was so polite!

 

 

So don’t let doctors brow-beat you. They don’t know it all, and those that won’t listen to patients aren’t helping those of us with cancer.  Those who do listen – such as Michel Guillon – are treasures, and their expertise and reassurance are an incredible support.

 

 

Cancer Research UK says
Eye problems are possible long term side effects of tamoxifen, but “they are rare.  There have been reports of visual disturbances including corneal (front part of the eye) changes and retinopathy (non-inflammatory damage to the back of the eye, the retina).  Most eye problems go back to normal once Tamoxifen is stopped.  But blindness has occurred in a small number of people.  People taking tamoxifen are also thought to be at an increased risk of having cataracts (cloudy patches in the lens of the eye)”.

 

Dry Eye

 

‘Dry Eye” is a recognised side effect from drugs; causing soreness, burning, irritation and dryness.

 

 

An excellent eye-soother for our eyes is Rohto.  Along the way of my cancer journey, I keep on being put on different drugs, and they often produce runny, wet, painful eyes, with gritty residue that sticks up my eyelids.

 

Emma, who works for a medical PR company, recommended Rohto.  Knowing that her company tends to promote products that are medically-approved, I tried it out.

 

The liquid comes in tiny little plastic ‘bottles’, with one day’s dose in each.  It has a re-usable cap so you can carry this around in your pocket and use during the day.  After about three days, I suddenly realised that runny eyes disappeared.

 

Now, I no longer woke up with my eyelids stuck together, and the pain had gone.  Bliss!  As the lotion is very gentle, I keep it in the medicine chest and use it when I have painful eyes.  Rohto is sold around the world, so ask a good pharmacist for the drops.

 

Helpful Tip

 

This comes from the Clinical Advisor, a magazine for doctors and medical staff:

 

“I encourage patients using ophthalmic solutions for allergic conjunctivitis to store the drops in the refrigerator for even more soothing results”. — Donna Mariano, FNP, Wallingford, Ct. (161-7)   So probably worth trying for any of our eye problems, if you ask your advisor first.

 

Brows and lashes

 

If you lose eyebrows and eyelashes, they usually grow back again, but may be sparse and sandy. Talking to doctors at the French spa of La Roche Posay, famous for their cosmetics that help patients with birthmarks and burns, they gave me a tube of their mascara they have developed for cancer patients (trust the French to understand what women want!). One end had a white thickening gel, the other a brown colouring. Used together, I looked into the mirror and film-star eye lashes appeared like magic!

 

La Roche Posay products are just starting to come in to Britain, and you can find them in major Boots stores.  Or you can try any good chemist in France, Spain, Italy, or  mail order:  O’Connell’s Pharmacy, 2 Grafton Street, Dublin 2, Ireland Tel: 00 353 (01) 679 04 67.

 

After all the stress, you are bound to have lots of lines under the eyes. Elemis sent me their Pro-Collagen Wrinkle Smooth pen to try out. Cynic that I am, I tested this under one eye, and, after two weeks discovered, as they say ‘lines were visibly reduced’. So I stopped being a cynic and use it under both eyes!

 

Another good rescue remedy is iS Clinical’s eye cream. See under Face  category for contact details.

 

 

 

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You are not alone with skin side effects

The layers of the epidermis (left). Melanocyte...

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Helping your skin

We can all feel depressed – particularly when we face yet another skin problem during and after cancer treatment.

Before cancer I wrote about skincare, and realised how important it is to ensure your skin (male or female) is in tip-top condition.  It is our largest organ, and needs looking after.

It’s not vanity – it is common-sense to ensure you skin is as blemish-free as possible, with no cracks or lesions that can make you vulnerable to dirt, infection, etc.

And if you feel good and look good – your survivorship pattern will be improved.

What started this website was the callous indifference I experienced from doctors, particularly those who should have know better and been there to help me, not make me feel I was making a fuss about nothing, when I asked what I could do about massive skin problems.

But when a big bully of a dermatologist at a major cancer centre in London told me blisters and skin lesions that appeared overnight were “due to your age“,  I realised that the tales I had heard from other patients were true, and some doctors seem to delight in making one feel small and that we complain over nothing.  Well, if we don’t look after skin properly we get problems.

So started this website, and found patients all over the world sometimes have to put up with the same indifference.

This video shows we are not alone:

http://www.youtube.com/user/ItsYourCallonCN8#p/a/u/1/YWi966AvHxE

The women in this video are discussing a particular brand of skincare, but what they say can refer to any brand that has been properly developed.  On this website I mention different companies’ products, and those such as La Roche Posay, iS Clinical, Evoskin, Clinique, Dr. Bragi etc. have been developed by dermatologists and doctors specifically for cancer patients, and many products have gone through tough clinical trials.

So don’t think you are being vain when looking after your skin.  If you don’t look after it, you could be laying yourself open to infection, certainly wrinkles and other signs of ageing.

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How to look after your face in Winter

Two cute Tibetan girls, friends, one wearing t...
Tibetan girl   Flickr

How to protect your face from wind, rain and other winter pitfalls


Michael Winner, food critic and film director, was moaning in his column that he always loses his glasses – so being very rich (as he keeps on reminding us), he bought 35 pairs to scatter all over his house.

Now that winter is here, I am going to follow his example and buy a lip balm for every room (not quite as many as he has).  I am determined to zap all rough skin and red patches  – and if I follow my own advice I hope to sail through winter with a dewy skin (well, that’s the idea!)

First, I need to Cleanse – Tone – Protect – Moisturise – and Guard against wind and sun.  Sounds a lot to do, but if you get it down to a routine it won’t take long – promise!

Of course, you could get your mother to smother your face in lanolin, butter or some other fat, as they do to children in mountain communities all over the world,.  There are still some communties that coat their kids’ faces and bodies with butter or something similar,  sew them  into clothes in the autumn and don’t cut these off until the summer sun re-appears.  Phew!  But apparently the skin underneath is lovely and soft.

But for less drastic measures, this is the way to go!

I mention different products made by different companies.  Being female I like to mix and match, and change my products – but every company I mention makes good products for all our basic needs.

Cleanse

Never, ever use face wipes.  Yes, I know nurses give them to you in hospital, but if you could see your face in one of those camera screens used by dermatologists, you would find they leave behind a fine, dry powder, so it’s no wonder      you come out  with dreadful skin, as they dry out your skin.

Always use a good quality cleanser, the best you can buy.  Elemis Pro-Radiance Cream Cleanser is doing a marvellous job on my face, and easily gets rid of dirt, grime etc.  leaving my skin soft.  Currently they have a sample size in their Pink pack for October, and the small bottle has lasted me over a month.

Tone

It’s always best to use a toner made by the same company that makes your cleanser, so I am using Elemis’s Soothing Apricot Toner.  I like the fact it has a spray pump so I don’t have to keep on taking the top on and off.

Protect

This is where Serums come in very handy.   I have been trying out iS Clinical’s Hydra-Cool Serum, and using just a few drops at night, in between Toning and Moisturising.  They have other serums, but for my skin this is the best one.

Moisturise -

Most companies make a different one to use in the morning, and a different one at night.  No, it doesn’t save money to use the same cream at both times, as each carries out a different function.  So always use a Day AND a Night Moisturiser.

Day:  I am trying out Chanel’s Hydramax + Active Cream, and it really softens and protects my skin.    Also, about twice a week, I use their Hydramax + Active Moisture Mask when I have a bath or shower, so that the steamy heat helps it to be absorbed into my skin.  Then I don’t wipe it off, but leave it on whilst I potter around the house, before putting on the Day skin cream when I go out.

It’s ironic that it was Coco Chanel who first made tanning fashionable, but recently the skincare company she founded has been making amends by producing lovely products that pamper and sooth our skin – so when you go past their elegant counters in stores, check out what is their latest product for helping our drug-dried skins.

Night:  I am using Elemis Pro-Collagen Marine Cream, not only because their products really do my skin good, but because they are tremendous supporters of breast cancer causes.  Thanks guys.  This cream not only works well, but it is very light so you don’t end up with greasy pillow cases.

Body care

Even in winter, winds and damp can penetrate beneath our clothers, and wreak havoc with out skin;  so you must still slap on the body lotion every day.  I am a real fan of Living Nature‘s clever packaging, and can write about the products as they are so good.  They make a lovely Lavender Hand and Body Lotion, which I use all over.  My skin likes the creaming, and I like the smell!  After all, Lavender is used as an antiseptic, so is very appropriate.

Your feet still need daily care with a good cream;  my favourite is Flexitol Foot Balm, which has the added joy of being prescribed by the NHS, so we get it for free (I hope you aren’t one of the thousands of cancer patients who are still paying for prescriptions?)

And every day, guard against wind and sun when you go outdoors.  I reckon this is the secret known to all good Skincare Consultants.  Recently, every time I have talked to one, whilst having a consultation or a facial, they all tell me  they don’t go outdoors without slapping on a 30+ sunscreen.  They should know, as their faces genuinely are their fortune;  what’s the first thing we do when we go for a consulation?  Yes, take a good look at THEIR skin!

If you don’t want to have horried dry, flaking lips, you will need a good lip balm;  around the house, as well as outdoors.  So I use a good Lip Balm like Rock Face’s Sheer Clear.  I went off and               bought half a dozen sticks, and there is one in every room, by my bed, next to my lap top, in the kitchen – and I use it constantly.  When I go out I have one  in the pocket of my ‘dog walking coat’ , and I always carry a Sheer Clear in my handbag, and use this as an undercoat whenever I use my lipstick.

And when you go outdoors, even when there are only grey skies, take a tip from the the best facial therapists and always wear sun protection.  Even on the dullest day there can still be sun rays breaking through the clouds, and they always wear it, “even on Christmas Day”, as one told me.  So I am a big fan of La Roche Posay, the company whose products are clinically trialled for cancer patients, and I am using their Anthelios XL 50+, which I reckon is strong enough to protect from any sun, especially if I go off on a winter holiday either in the sun or snow.  And an added bonus:  it is tinted so I don’t need a foundatio

Enjoy the winter, and hopefully you won’t have to dread the effects of wind and rain!


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Deep cleansing and no toner needed

iS Clinical comes up trumps


Let’s be brutally honest – I am bone idle.  Anything that will shave 30 seconds off my cleansing routine has to be worth it, in my book.

So when I read the instructions on my iS Clinical Cleansing Complex bottle – I gave a happy smile.  It pays to read the blurb (but so often I forget).

There, in the instructions, it tells me to moisten face and neck with water, then apply a small amount – then rinse.  So one gets all the benefits, without feeling that the lovely ‘soft’ feeling is going to be swept away with a toner.  And I love the Cleanser;  it really makes my skin feel clean; and it is still soft hours after.

And the big benefit is that iS Clinical, after a great deal of research and clinical trials,  is endorsed by Washington Cancer Center especially for cancer patients.  Makes me wonder why we haven’t done something similar in Britain, and why our dermatologists often haven’t helped cancer patients with skin problems, judging by my post bag from all over Britain.

Just be warned – the next dermatologist or nurse who patronisingly tells me to use an aqueous cream – I will scream the place down.  It is shocking that we put up with their old-fashioned approach to our skin problems.  Anyway, rant over, and thank you  – iS Clinical!    www.isclinical.ie

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Latest research shows Skin cancer doubling

Cybill Shepherd moonlights at Madame Tussauds ...
Image by mharrsch via Flickr

Latest from Cancer Research UK highlights dangers from sun – celebrities aren’t immune

With the death rate from various skin cancers rising every year, sadly it is older people, particularly men, who show most shocking growth rate;  the number of men dying from the deadliest form of skin cancer has doubled over the past three decades.

For younger people, sunbeds have accelerated the growth of skin cancer, and there are moves afoot both in UK and USA to ban these beds, at least for those under 18 – but when will this happen?

One wonders if it was sunbeds that caused such a large number of celebrities to present with cancer?

Melanie Griffith, Cybill Shepherd, President Bush, his son George and Laura Bush, Bill Clinton, Ronald Reagan, Elizabeth Taylor, Princess Michael of Kent,   Scottish actor Ewan McGregor and many others are said to have developed types of skin cancer.

And when famous actors such as Bob Marley sadly died of melanoma, how can we try and ensure we don’t follow in their footsteps?  Bob Marley’s death shows that anyone with a darker skin does NOT have immunity from this dread disease.

Cancer Research UK show figures more than doubling recently,  with a steep increase in deaths from malignant melanoma, especially in elderly men.  Yet they say the disease is preventable.

Caroline Cerny, from Cancer Research UK, says men needed to learn to look after their skin.  “Too often men leave it up to their partners or mothers to remind them to use sunscreen or cover up with a shirt and hat, and even to visit the doctor about a worrying mole,” she said.

If you are worried about a mole, go to a GP.  Dr Jonathan Bowling says “it’s crucial that people go to their doctor as soon as they notice any unusual changes to their skin or moles – the earlier the cancer is diagnosed the easier it will be to treat.”

What else should you do?

1.  If possible wear loose but covering clothing in sunny weather.

Avoid wearing

  • low-slung jeans  – bare flesh at the back is a danger zone
  • sleeveless vests and tee-shirts are a no-no
  • Watch out for the throat area
  • shorts are fun – but slacks and trousers are better, as are long skirts
  • and if you are recovering from chemo – or are bald -  wear a hat

Use Sunscreen with a minimum SPF 15:   30 is better

  • Put on creams at least 15 mins before going out;  don’t rub in, but let the skin absorb them
  • Don’t forget backs of hands; knees;  tops of feet; bald heads; back of neck and throat area
  • Re-apply during the day, particularly after swimming
  • And use an adequate amount.  Don’t scrape it on – slap it on.  You are doing this to prevent a horrid cancer.  Isn’t  your life worth the extra expense of using sunscreen generously?
  • and use DuWop. See below to find out what this is!

La Roche-Posay (LRP), the dermatological skincare brand recommended by over 25,000 dermatologists worldwide has issued the following advice, emphasising the importance of adopting sensible sun safe behaviour to prevent future complications.  Because sadly, skin cancers can take years to develop.

Teenagers spend hours on suntan beds, not caring that they are building up almost certain problems for the future.  Sportsmen and women go out in the mid-day sun without taking proper precautions, etc.

LRP say “Sun creams are an important part of sun protection, but no sun cream can provide 100% protection, so a wide brimmed hat, sunglasses and T-Shirt should be worn in the sun. It is also important to stay out of the sun between 11am and 3pm and follow the British Association of Dermatologists Sun Smart advice. They also have a lot of factual information on their site about different skin cancers, and basic advice about how to treat the sun – because there are also benefits to sunlight, and you don’t want to stay out of it completely.

http://www.bad.org.uk/site/574/DesktopDefault.aspx

Sun radiation consists of UVB and UVA radiation. In the short term, your skin will be visibly affected by mainly UVB rays. But the true extent of the problem is seen through the long-term effects of UVA.

These rays are responsible for premature skin ageing and can cause sun allergies such as heat rash (Polymorphous light eruption) and brown spots (hyperpigmentation) and can even provoke phototoxic reactions when combined with certain commonly prescribed medications. It is therefore essential to choose a broad spectrum UVA-UVB sun cream.

Anthelios XL, provides unparalleled effectiveness and dermatological tolerance to

protect against cellular damage caused by UV rays offering highly effective suncare

protection. La Roche-Posay, has demonstrated the clinical efficacy of Anthelios XL with 21

clinical studies. The combination of patented filters Mexoryl® SX and Mexoryl® XL

enables the Anthelios filtering system to provide efficient protection against the entire

spectrum of UVB-UVA rays. New this year La Roche-Posay introduces a new minimalist

filtering system called Mexoplex® into its SPF 50+ Fluid range, offering the highest UVA

protection ever as well as excellent photostability with a reduced content of chemical

filters.

iS Clinical is the American skin care range that was developed at Washington Cancer Center.  They say they do not manufacturer a fake tan product, however, spokesman Alan Kelly says, ” we do sell a tinted sunscreen in both the standard cream, and a powder form.  Many of our clients use the tinted version at this time of year instead of make-up. They apply the tinted sunscreen and some will also use some blusher to provide definition. That way they receive a full board spectrum UVA/UVB protection all day. I will also be honest and say that some clients find our perfect tint version slightly too dark. In this instance they normally purchase the translucent and tinted version which they can mix together to achieve their desired shade”.

iS Clinical also make an SPF25 Treatment sunscreen to protect the body, which I often use as it moisturises my skin as well.  Double action!

Their products are mostly sold through doctors’ practices, or contact alan@isclinical.ie

Beware! Sun bounces off reflective surfaces, such as water, sea, concrete, etc.  Even when under an umbrella, sitting by the seaside, or on a concrete patio, the sun’s rays can get bounced off the surface, and you end up with horrible burns.  So wear something or slap on sunscreen, even when under the protection of the largest umbrella.  Those rays bounce an awful long way!

And finally – don’t despair

You don’t have to go round looking pale and white – or copy Victoria Beckham and other celebrities who spend hours, – and mega-pounds or dollars – having spray tans.

All my friends have been asking “where have you been?”  I look as it I have been carefully suntanning for the past week on a Mediterranean beach (I wish – the beach part anyway!).  My skin is a lovely colour, thanks to a wonderful self-tanning gel from DuWop.

Calling itself ‘clear revolotion’,  i

this is really a clear, cooling ice blue self-tanner that actually tones and conditions your skin,  provides natural sunscreen and gives you a safe, healthy, glowing tan that develops overnight.

I keep on looking down at my legs – all smooth and golden – and am so proud of them!  And possibly the nicest bonus of all it NO SMELL!

You know that horrid ‘bad grapes’ smell that sticks around you when you wear self-tanning products?  Time and time again I read the blurbs that promised no smell- and found the advertising hype wasn’t true.

But with DuWop there is no smell – no-one would know I had put this on, if it weren’t for my tanned body!  Lovely stuff!

And a weird warning!

Lisa Fayed, writing on About.com Cancer Guide,  for American and Canadian readers,  says “If you drive on a regular basis, you may be putting yourself at risk of developing skin cancer. Whether you hang your left arm out of the window or rest it on the door with the window closed …. the left side of your body is being exposed to harmful UVA rays, especially your face and arm. Window glass may protect you from UVB rays, which cause sunburn, but it does not block UVA rays, which play a role in the development of skin cancer”.

A study published in the May 2010 edition of the Journal of the American Academy of Dermatology shows that drivers are at an increased risk of developing skin cancer lesions on the left side of their bodies more often than their right. In the study, researchers examined the medical records of 1,047 people with skin cancer. They found that 52.6 percent people had skin cancer on the left side of their bodies as opposed to 47.4 percent on the right. Melanoma, a deadly form of skin cancer, occurred much more frequently on the left side — 74 percent compared to 26 percent on the right.

For those of us who drive on the correct i.e. Right side, this obviously refers to our right side!

In the old days you rode on horseback on OUR side of the road – it was easier to draw a sword against an attacker.  But during the French Revolution this was changed (by the French) to walking or driving a cart on the opposite side of the road;  they didn’t want to be reminded of aristocrats, who could afford to ride horses.  Gradually, as Napoleon conquered Europe, he made every country follow the French way.  But the British were never conquered by him, so we still drive on the correct side of the road!  As does half the world!

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Don't let a bath or shower dry out your skin

Kick Fido out the bath – and enjoy yourself!

These are products that help keep your skin moist during and after a bath or shower

I have used these products ever since I woke up one morning covered in bloody skin lesions, and and turned in desperation to these companies, when a top Dermatologist tried to bully me to stop me asking “why did this happen?” .  His answer (the idiot) was “it’s your age”.

I drove him from the room, him saying “I am not going to stay and answer questions”, when it was obvious his students agreed with me – not him.

So these companies came to my rescue:  some of their products have had clinical trials in hospitals, some are approved by the FDA – but all of them bend over backwards to make good products that help us.

Doctors and nurses get all pious about not using ‘commercial’ products on your skin.  Huh!  And they don’t like scent either, but when I found out that lavender, rose and other plants and flowers are often used in medical products I stopped listening to them.  Lavender, in particular, was used as an antiseptic in World War I.  So I think there are some we can use – carefully.

If you are like me (and the dog!), you do like a bit of pampering in the bathroom!  The following products have been tested by me;  my skin is appallingly sensitive, thanks to drugs, so if my skin doesn’t errupt…….. it should be OK !    So although this is a totally ‘me’-focussed, non-medical post, if it works for me it should work for most people.

Out shopping I tend to make my choices amongst the following companies:

Elemis Recently I have been put on bisphosphonates (for osteoporosis – probably from Aromasin), and that is a real BxxxxR!  However, Elemis happened to send me a lovely bottle of their Frangipani Monalloi Moisture Melt – which arrived just in time to do exactly what the label says – melt into my skin.  Bonviva (the drug I am taking) is particularly vicious, and has managed to destroy my nails (Evonail are working on this at the moment), so anything to counter its effects on body skin has to be strong to be effective, and this Frangipani oil certainly is.

It is an oil, so be careful if you rub it into your feet that you wipe them down before you set off across a polished floor – but the effects are superb.

Elemis, in their quiet way, produce some fantastic skin products;  an old favourite that has just been re-launched to celebrate their 20th birthday is their Skin Nourishing Milk Bath – does just what it says on the label.

As I lie soaking in my bath, I think I am going to use the bottle it comes in to make Raspberry Vodka – which I give as presents to friends (I don’t drink – but my friends do!)

And of course their Spa just behind London’s Bond Street is the top place for superb treatments and massages.  Whatever I try of theirs always seems to hit the right spot, and they really do understand what our skin is going through.  And the little mews is just the place to have lunch or a coffee and relax afterwards.  You can buy all the Elemis products on the ground floor of the spa, and you always get lots of samples as well – making shopping there even more fun!

Finders makes one of the best body scrubs, called Dead Sea Salt Scrub, and it costs under £10. Another excellent product is their Dead Sea Body Scrub with Frankincense oil (£6.99). The same company also makes Black mud mask soap which is excellent for hand washing (stops drying out hands) (£3.29). www.deadseabathcare.co.uk .

Then in your shower or bath use Finders Heavenly Hydration in your bath or shower, then gently smooth their Skin Softener all over your body (don’t forget the bit around your waist on your back, which often gets very dry). This product is excellent for an emergency ‘repair’ when your skin is really dry, or it reacts when you are put on a new drug.

However, do wipe your feet before you step on a polished floor, otherwise the cream may not have soaked in – and you will slide all over the place!.  These products do what the name says on the package, and keep your skin soft,, smooth and – most important – healthy.  I can’t understand how Finders manage to keep prices down, and still produce some of the best bath and moisturiser ranges – but they do.

When you start on drugs your skin may be so dry that you will need to use a body moisturiser at least twice a day, and if you go swimming use it again after you come out of the water.

Floris I love the lightly perfumed bath gels, cleansers and gentle body lotion made by Floris.  Founded in 1730, Floris products were good enough for Florence Nightingale. So what’s good enough for one of my heroines is good enough for me.  Today, the company is run by the eighth generation of the family, and walking into their shop at 83, Jermyn Street, you are still given the same ‘old-fashioned’ service.

Floris make a range of sweet smelling products that don’t dry the skin, and are gentle.  Not only that, but they also support the Cancerkin centre – so are well worth supporting themselves.

I had a marvellous friend who, knowing I loved jasmine, used to give me Floris products in their Jasmine range, including Body cream, and other bath products in same range.   They also make ranges smelling of Roses, Lavender, Lily of the Valley, etc. and the evocative Edwardian bouquet.

When advised by a doctor that I needed to ‘bombard’ my skin with something extra strong, I used Floris’ scents to add to almond oil to make this smell nicer.  However, you won’t find this type of product made commercially, as you have to be very, very careful.  Firstly because it is so sticky it can be dangerous walking, and secondly it takes time for the oil to be absorbed into your skin, so you have to be careful what you touch and where you sit!  But it is as useful remedy when drugs make your skin scaly.

Incidentally Floris also make a perfumed Hand Wash, which is a good idea as it doesn’t dry out hands, unlike soap.  www.florislondon.com

N.B.  I was horrified to find an NHS website advocating using almond oil on our faces.  It is NOT made for this;  our facial skin is a different composition to body skin, and needs a lighter product.  At times I wonder if the NHS is working against us!  Just to be sure I hadn’t got it wrong, I asked Julia Cox, the very helpful member of Clinique’s staff who deals with the medical profession, and she sent me an email confirming we must ensure we use facial oils – not heavy, sticky ones.

Bronnley are one company that use floral scents, and, they have teemed up with the Royal Horticultural Society to produce a collection based on some of England’s loveliest scented flowers.

Incidentally, Bronnley was founded in 1883 by Jimmy Bronnley and is one of the last solely     British owned firms in its category.  Not only do their products smell gorgeous, but they are made in Britain, so you  are sure no under-age children and used in the production!

I love the scent of roses, and my favourite treat is to lie back in a bath of their Rose Bath Relaxant – it does exactly what it says on the label – pure bliss!

Afterwards, whenever I have particularly scruffy skin (usually when a new drug has been prescribed), I know if I don’t zap these warning signs, I will break out in skin lesions – nasty bloody blisters and peeling skin.  This has happened twice – twice I have been told “it’s your age”, and eventually I took myself off to France to have these dealt with properly.

Femfresh as a company make a lot of helpful products, designed to spare our blushes and make us feel fresher!  They are soothing, hypoallergenic and dermatologically and gynaecologically tested, and their Femfresh spray makes you feel much fresher all through the day.  Their helpful products can be found in major chemists, such as Boots and Lloyds pharmacy, around Britain.

Now I have certain products which I put on straight away after a bath when I am on a new drug.   I pat myself dry, and whilst my skin is still warm and moist, spread on Clinique’s Deep Comfort Body Butter.

Again, this does what it says on the jar, and is fantastic at smoothing down my skin – and moisturising it not only on the surface, but deep down so that this lasts throughout the day.

Clinique also make a Body Lotion – a slightly ‘runnier’ version that sinks in more quickly, but of course isn’t as moisturising and the Body butter.  But if you like a liquid version, this is excellent, and perhaps revert to the Body Butter once or twice a week.  The background to this comppany is very ‘medical’, with doctors in charge and a history of careful, clinical research.

iS Clinical is an American company, making top skincare products, which are now sold via good dermatologists in UK.  Their Body Complex is a marvellous skin lotion to smooth on after a bath or shower, and is excellent at zapping my dry skin, particularly if it is being ‘itchy’. Although the lotion  is rich, is is not cloying, and sinks in without leaving you all sticky.

Is Clinical is a botanical treatment especially suitable for ‘more resilient skin areas of the body’ .  i.e. those areas that go all hard and scaly!  If you are about to have more radiotherapy, try using this twice a day for a month before – it is brilliant at ‘priming’ your skin.  And I know that Washingon Cancer Center has had a lot to do with promoting this for cancer patients to help with dry skin.

If you can’t find their products,  go to cosmetic surgeons as they are much more likely to recommend and supply these products to their patients.  There is big money in this side of medicine, so their surgeons are pretty clued up – and they will recommend iS Clinical because it helps faster healing – so one reason why it is excellent for ‘cancer drugged’ skin.

La Roche Posay is another ‘hero’ range of products, but recently they have had to withdraw and re-write their marketing for these excellent products, because new rules and regs. mean they can’t advertise that their products are helpful for cancer patients.  The new MHRA rules are so convoluted I can’t understand them – all I know is that a product I have used for 20 years now can’t be sold to me in a dropper bottle;  instead I am supposed to use Minims (those horrid little fiddly plastic things) which are impossible (I have had polio and fingers can’t squeeze the drops out).  So instead of using a sensible bottle, I have to cut off the Minim bottom, let the solution run out into a container, soak it up using a dropper – then drop the solution into my eye – highly contaminated process!

Anyway, I use their products all the time – and the fact that they have been clinically-trialled in France (with its excellent cancer-care record) is good enough for me.  They make a wide range of products, and these are sold through major Boots outlets, as well as in some top chemists such as John, Bell and Croyden.

However, in the summer-time, after a bath I will spread on one of their body cream products – then wait a few minutes until this is absorbed – then spread on their Anthelios sun cream.  This should not be rubbed in, but allowed to be absorbed naturally;  this will give much better protection.

I will be writing more about their products, when the powers-that-be have made up their minds what exactly they are allowed to tell us – but as I am non-medically qualified, there is nothing to stop me from saying I was prescribed La Roche Posay when I went to France to be treated for side effects from cancer drugs.  !!

Dr. Bragi.  If I have had an extra dose of pills – such as antibiotics that seem to be the standard treatment for just about everything today,  I reach for products developed by Dr. Bragi. He comes from Iceland – and started to use his research to develop products using marine enzymes – plenty of them in Iceland.  These products act like a serum, and I use the Face and Body Salvation (does what it says on the label) when I can feel those rough patches developing as a side-effect from antibiotics.

I spray this all over my body, and can use it on my face as well.  It sinks in, and really gets the skin back on track.I don’t begin to understand it works – but the crystal-clear pump action bottles come with a warning.  They are sensitive to lipid-based products, so wait at least 15 minutes before applying any other cream or lotion on top.   www.drbragi.com

Products I have mentioned are fairly expensive – but if you spend £80 on a pair of trainers, doesn’t your skin deserve the same attention?  Our body skin is vitally important, and yet there is so much of it to protect it can be an expensive exercise.

And nurses look at my skin, and tell me it is lovely!  This is all thanks to the products that I use – nothing to do with me!

What I would tell Martina about handling cancer treatment

Martina Navratilova
Image by franz88 via Flickr

Martina Navratilova is going to France for Radiotherapy, but worries about burns

Martina has decided to come out in the open and say she has Breast Cancer. She realised she could help others by going public and raising awareness that early detection can help save lives

With her fitness regime, no-one would have ever suspected that she would get cancer.  The health gurus continually make us lesser mortals cringe, telling us our unhealthy life-style contributes to getting cancer – but Martina ? No, she would be the last person, one would think.  But cancer can happen to anyone.

But why go to France?  For some time the World Health Organisation has placed France at the top of the cancer treatment ladder.  And now, when she could be treated anywhere in the States, Martina has opted to have radiotherapy in France.

The 53-year-old, one of the idols of women’s tennis, told Reuters in a telephone interview from New York that she felt great physically, and did not expect her six-week radiation therapy course in Paris, during next month’s French Open, to get in the way of prior commitments.  One only hopes she won’t find that sometimes this treatment has a way of making one extremely tired…….

“My life has not changed other than I have to be in one place for six weeks to sit through radiation,” she says.   But…. she admits she is scared that the treatment will burn her skin.

France has probably the best post-cancer survival rate in the world – far better than ours.  I wonder if it is because their medical profession helps patients stay on life-prolonging hormonal drugs, by treating side effects, rather than brushing them aside?

In France, doctors work with skincare companies to develop state-of-the-art care that repairs the damage drugs do to our bodies; more than likely, she will be told to slap on Aloe Vera to prevent burns, or given an Evolife product designed to help with specific side effects from cancer treatment.

Evaux Laboratoires, that makes Evolife products,  is a French company producing

  • Evoskin = for dry face and body skin
  • Evonail = repairs cracked and broken nails from cancer treatment
  • Evoskin = red breast during radiotherpy
  • Evomucy = mouth ulcers (this was brilliant when hormonal drugs gave me horrible chemo-mouth)
  • Evodry – dry mouth
  • Evodeo = body odour (nurses delighted in telling me I couldn’t use deodorant when                                                         undergoing treatment – well, now we can).

Over the past five years Evaux have been supported by ANVAR (the National Agency for Development from Research) and part of Project Eureka in Europe. This  carries out research together with specialists in oncology and dermatology.

Evaux Laboratoires has created a Research and Development department called EVOLIFE to improve the quality of life during chemotherapy, by limiting specific side effects of some chemotherapy treatments, and providing solutions to problems patients experience with side effects.

At their conference last year they explained the on-going clinical trials that were taking place in French hospitals, and an Oncologist talked about how they were giving the appropriate cream, such as Evoskin,  to patients BEFORE they started treatment, to ‘prime’ skin.  This is a fantastic product;  the only one I know that you can use on your face and your body.  I didn’t believe this at first, but it works.

I gave some Evomucy to a friend who had mouth ulcers from chemo, and he said it was superb.

www.myevolife.co.uk

One of the best Aloe Vera gels is Equilibra – brand leader in Italy, which is now coming onto the market in UK.  It is 98% aloe vera (many cheaper brands contain much less).  It is the extract from this plant that costs – but makes it effective. Cost £6.49 (although one private hospital sells the 150 ml tubes for £12!).

Incidentally I always have a tube on hand in the kitchen. It is superb for zapping burns right when they happen as you are cooking, and preventing blisters.

Info: http://www.equilibra-range.co.uk Buy from : http://www.chemistdirect.co.uk

As she is a naturalised American, Martina may prefer to use American products, and at Washington Cancer Center they have developed and trialled iS Clinical products to help ‘cancer skin’.

iS CLINICAL® skincare has been offering help to people undergoing treatment for cancer, since launching the iS Cancer Care program at the Washington Cancer Care Institute, Washington, DC.

The program provides skincare solutions for patients undergoing chemotherapy or radiation treatments. It features a very special selection of iS CLINICAL® products that specifically address the unique skincare concerns of cancer patients. These products contain extremely powerful botanical antioxidants to protect against free radical damage, generated by the environment and as a result of certain cancer treatment therapy. Medical literature gives overwhelming support to using antioxidents during cancer therapy. They have been shown to improve the out come of cancer treatments and to reduce the side effects.

Alan Kelly, their spokesman, says “Our products also combine ingredients that strengthen cellular health and integrity such as vitamin B3 and green tea. We utilize proven cancer care preventative ingredients, and we offer the safest, most advanced forms of UV protection”.  Martina will have to use strong SPFs to protect against the sun, especially when she is reporting on tennis.

When attitude is paramount,  the iS CLINICAL® Cancer Care program offers hope and relief for those suffering with the effects of cancr treatments. Quality of life issues. like skincare concerns, are valid and real, and luckily for Martina US oncologists realise this.

Some products Alan recommends for differing skin conditions are:

  • Tightness & Pulling, Radiation Dermatitis we would recommend our Poly-Vitamin Serum which has intensive healing and rejuvenation properties.
  • Dry & Cracked Nail beds we would use Hydra-cool Serum, a light but powerful hydrating and soothing serum.
  • Scar Tissue: Super Serum Advance, reduces scar tissue and boosts healing.
  • Redness, Acne and inflammation we would use Pro-Heal Serum Advance, this formula is anti-inflammatory and reduces Erythema.
  • Dryness : Facial – we recommend Moisturizing Complex, moisturizes and offer a protective barrier. Cracked, dry skin on arms etc we use Body Complex, again offers a moisturizing action and offer a protective barrier.
  • Dark under eye circles, puffiness we use Eye Complex to lighten and hydrate the area.
  • Prevention and treatment of radiation burns our SPF25 treatment sunscreen to offer the ulimate UV protection

https://www.mbnsclinic.co.uk/store/

And whilst she is in France, the hospital will more than likely recommend that Martina uses products from the French skincare company La Roche Posay. At its ‘mother’ centre in the town of Roche Posay, they treat over 8,000 patients with skin problems every year.  They make a wide range of suitable products, which they sell at major chemists in over 80 countries. including John Bell and Croyden in Britain.

www.johnbellcroyden.co.uk

We all wish her well, and as a patient she will find a great deal of understanding and help over the side effects that are bound to happen as a result of radiotherapy, and when she will be put on hormonal drugs.

What you can do when winter, medical drugs, central heating etc. ruin your skin

A typical rash
You DON’T have to put up with horrid rashes and flaky skin    Wikipedia

HOW TO AVOID TIRED ‘DRUGGIE’ SKIN

Winter is here, and everyone’s skin suffers.  When we are indoors, heating dries it out.  Ourdoors, wind, rain and cold has the same effect.  This is particularly bad for those of us with dry skin, and if you are taking antibiotics, medical drugs or many other medicines, your skin is even more vulnerable.

To make sure your facial skin recovers as quickly as possible from the effects of drugs, and to counter that awful ‘tired, dull winter face’ you get, with patches of flaky skin, open pores, etc., you need a routine:

Daily

  1. Cleanse your face (with specially formulated cleansers, NOT soap)
  2. Tone your facial skin
  3. Moisturise your facial skin
  4. Protect your facial skin and help it re-build

Once or twice a week you need to give skin a boost by using

  1. Exfoliator - to  get rid of flaky skin, dry patches, etc.
  2. Masks – probably one to minimise open pores, another to clear skin and another one to rehydrate.                    Ask advice of a good skin Consultant who will tell you which mask/s are most suitable for your skin.

Products to use

Time and time again I turn and return to ‘old faithfuls’.  All the companies mentioned underneath make excellent cl;eansers, toners and moisturisers.  Often products are made to work with each other, so it makes sense to try out products made by the same company, once you have found a brand that suits you.  Make a friend of one of their Beauty Consultants in a local store, and keep going back to them.

Let the Consultant see how your face is reacting to different products they recommend, and you will find lots of samples and other goodies will come your way.  I always phone up when I need something, as a good Consultant is often away on training courses, so I want to make sure ‘my’ Consultant is going to be there.  Sometimes, they will tell me “make it next week, when we have a special promotion and I can give you some goodies”.

Clarins have very sensible ideas to help improve a routine cleanse – they suggestExtra Comfort Cleansing Cream PR

  • Warm Cleansing Cream in palm of your hands
  • apply gently all over face (don’t forget crevices around the nose)
  • Briskly lift hands off and on the face 4 -5 times, creating a suction effect
  • this will gently lift make-up and impurities without pulling or irritating your skin
  • rinse off with water or tissue off.
  • Follow with Toning Lotion

Once you have had a long course of drugs, you must realise that your skin won’t return to its old and carefree maintenance.  Cancer Drugs are powerful poisons, and will have an effect on your skin;  some experts say that this is equivalent to ageing your skin by a decade or even more.

Products I mention are mostly in the medium price range;  some are fairly expensive – but if you spend £80 on a pair of trainers, £350 on a pair of Jimmy Choos, or £600 on a handbag – doesn’t your skin deserve the same attention?  yOUR FACE IS YOUR PASSPORT TO THE WORLD.  So it deserves to be looked after.  Buy good creams, and they should last at least 4 – 6 months, so spreading cost over that many months – aren’t you worth it?

Clinique said they were well aware of problems caused by drugs, had developed special creams to help patients and Comfort on Calltook stands at Dermatology and other medical conferences to tell the medical profession about this – but doctors just weren’t interested. They even have an excellent booklet written for the medical profession which lists every ingredient in their recommended range, so staff can check if anything might produce a reaction to certain drugs.  (I got hold of copies to hand to staff- but they landed in waste paper baskets).

What is it about the British medical profession that it can’t understand that women (and men) today want to keep their skin looking nice? Skin is our largest and one of our most important organs, and if it gets cracked and erupts, this sets up all sorts of problems, not the least germs getting in to the lesions causing havoc.

Elemis At last a British luxury skincare brand!  They constantly manage to produce excellent skincare, and their regime of

  • Cream Cleanser – massaged into dry skin, left for one minute then removed with the dampened towelling mitt provided with the cleanser.  Then tone.   Elemis
  • Day time – moisturise with the Pro-Collagen Marine Cream
  • Night time – use Pro-Collagen Oxygenating Night Cream
  • This is a sure pic-me-up when ever strong drugs try to take over

and is particularly effective as Noella Gabriel, their Director of Products, says, “we are seeing a trend towards a demand for a richer, creamier texture”.  This is particularly helpful for skins dried out by drugs.

As I write this, Prof. Sir Magdi Yacoub has written in the The Daily Telegraph “we in the medical profession ……..have to listen more to our patients”.

In France they listen, then you are likely to be prescribed products produced by La Roche Posay (more details later).  You might even be sent to their medical spa where over 8,000 lucky French patients receive treatment there every year.  If you want to follow them, look under Holidays.  This is a totally different approach, where doctors work WITH the patient, rather than dismissing our concerns.

BME

Sadly, those with dark or black skins tell me they often feel left out.  So the companies I mention here all make suitable products, and most say that their Consultants can give advice if you need to use any special creams.

Anthelios (part of La Roche Posay range) is certainly recommended for people with black skin, those who have vitiligo and is also recommended for every skin type that is photosensitive or photosensitive as a consequence of photosensitising drugs (chemotherapeutic drugs are known photosensitises).

Also, people with black skin who require camouflage make up post procedure or as a consequence of a skin pathology can use the Unifiance range of make up produced by La Roche Posay (available in most countries that stock LRP including Ireland, but not UK, so those in Britain have to order it on the net).

They don’t, however, have a range specifically developed for black skin, as Camilla Rummery, their Medical marketing spokeswoman, says “Our range is recommended for all skin colours. We have also done multiethnic studies on the Effaclar range (for acne and oily prone skin) and of course our Lipikar range is suitable for all atopic and dry skin”.

Sadly, when nurses compliment me on my skin, and I start to tell them why it is in such good condition, even though I am on hormonal drugs causing cancer skin side effects – you can see they aren’t paying a blind bit of notice. Their eyes glaze over at the mention of any commercial products – and they live by the NHS mantra “free at the point of delivery”.

Yet almost everyone spends money on products for our faces – so why won’t nurses recommend those that will do our ‘druggie’ faces good?

They don’t seem to think we can pay for something that will make life easier and more comfortable – their dog-in-the-manger attitude is pathetic.

Clarins is another skincare company that has spent years developing face care products. They have concentrated on treating other skin problems, but their products work really well for every cancer patient I know.  Their founder, Jacques Courtin-Clarins, was passionate about using herbs and plants long before this became fashionable, but I can remember talking about a Romanian company I knew he wanted to buy.

Eventually Clarins decided not to buy this company – one could only purchase a small quantity because it was so natural there was no preservative, and he thought women wanted something that lasted. However, I learnt from him that not all preservatives and chemicals are bad – and what is used in the products I have tried have had no bad effect on MY skin – and that is a severe test!

Clarins recommend exfoliation,  both for the face as well as body skin, but NEVER use the same product on face and body – the skin is much softer on your face, so you need a gentler exfoliant to that you use on your body. Skin cells are renewed every day, but accumulation of ‘dead skin’ on the surface, either from day-to-day wear, or because of side effects from the drugs – or both – leaves you with flaking and rough skin.  Use exfoliators on wet skin, massage in gently and rinse thoroughly about once or twice a week, and skin stays soft and smooth.

Tip Use this before applying fake tan to help it go on smoothly.

How it’s done in Germany

Contrast the way medics treat us, with the care shown by Marion Schneider, head of the 500-bed Klinik Bad Sulza in Germany.  I happened to mention to her that my nails were peeling off, but had been saved by products from NailTek.  Immediately she called in Ute, head of their skin care department, they quizzed me about their products, and I left them discussing running clinical trials with the cancer dept. at the University of Jena.  Try that in Britain!

So – unless you are very lucky, if you have peeling skin – blood lesions – itchy skin – etc., it is up to you to sort it out. Or get help from GOOD skincare companies.

Making money

Yes – these companies are in business to make money. But many years ago the major companies realised that if they produced creams that gave customer allergic reactions, consumer groups (particularly in the USA) were so powerful they would be driven out of business by the Courts. So they improved research and development (R & D), employed a whole lot of scientists and doctors who were passionate about skincare – and the result is creams that are almost miracle creams. Not quite – we still can’t believe the ads that promise eternally youthful skin, but if we use good products in the right way, we can do a lot to give ourselves better skin.

Women – and men – today realise that good skin makes you feel better.

Clinically-approved skin care

Recently a new American company has hit the UK market: iS Clinical. Trialled at Washington Cancer Center: iS Clinical‘s products have been tested in Clinical Trials in the US, so the British oncology sector MUST wake up and see what happens in other countries.

Is Clinical’s Body Complex is brilliant – they call it ‘innovative skincare’ and it really is. At the Washington Center women use these products twice a day – reducing to once a day when their skin feels ‘normal’.                                                email pmorgan@mentormedical.co.uk for info how you can order this.

I asked someone from the Royal Marsden Hospital if she had heard of them? No.  Would they like to try some? “We are only interested if there have been clinical trials”. Yes, there have – at Washington Cancer Center. She repeated “we are only interested if there have been clinical trials” – Translation: ‘we aren’t the slightest bit interested as you are ONLY a patient.’

One friend, an eminent scientist, was told by them when she queried treatment she was being given:  “you may be a Scientist, but here you are ONLY a patient”.

So the Marsden wasn’t even interested that another specialist skincarecompany has also launched in Britain:   La Roche Posay (LRP), which you can now buy at major Boots stores, or online.

And if I have had an extra dose of pills – such as antibiotics that seem to be the standard treatment for just about everything today, I reach for products developed by Dr. Bragi. He comes from Iceland – and started to use his research to develop products using marine enzymes – plenty of them in Iceland.  These products act like a serum, and I use the Face and Body Salvation (does what it says on the label) when I can feel those rough patches developing as a side-effect from antibiotics.

I spray this all over my body, and – unusually – it can use also be used on the face as well.  It sinks in, and really gets the skin back on track.  I don’t begin to understand how it works – but the crystal-clear pump action bottles come with a warning.  The liquid is sensitive to lipid-based products, so wait at least 15 minutes before applying any other cream or lotion on top.   www.drbragi.com

And I have tried the products recommended by the NHS, and found them disgusting.  Far too thick, not enough ‘science’ so that they are right for sensitive facial skin, and don’t do anything.  If someone has found a good NHS cream – tell me please!

Helpful Tips

There is an American Dermatologist called Dr. Craig Kraffert.  He works for the Redding skincare clinic and has helpful information on his website – did you know that we should use a liquid softener in the washing machine – those cloths can cause a reaction?  If you live in the States, the website is set up to sell La Roche Posay products.    http://www.reddingdermatology.com/commonprob.htm

But with the skincare industry in Britain waking up to the fact that there are a lot of us around, and WE NEED HELP! things might get better for us. We just have to go out and ASK – not rely on doctors who recommend useless products, or just don’t care.

Boots are training Skin Healthcare assistants to give us help. They emphasise these are not to replace dermatologists, but frankly they will probably be far more helpful!

Outdoors

When you go outside, even in winter it makes sense to use a moisturiser of AT LEAST Factor 15 on your face everyday (two lots of Factor 8 are still only Factor 8), and a minimum Factor 30 when in the sun.

In summer Factor 30 is the least  number to use on face and body.

There has been some talk that 30 is the highest possible, but Australian creams are now offering up to Factor 60. Australians are extremely sun conscious; even the macho lifeguards on beaches wear high density sun screen creams. So if they do, you should too!

Clarins are a company that takes sun protection very seriously, and make excellent fake tans. They recommend using their exfoliating creams before you apply fake tan for a much more even finish.

And whatever you do – HAVE FUN! I defy anyone to be miserable when there is a gorgeous lavender scent coming from the bathroom, as you slather on a lovely cream (and I bet you the men enjoy this too!)

And trawl through the other posts on this website, with lots and lots of information about ‘Hero Products’.

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What to do when drugs cause skin lesions, dry patches, itching etc.

Skin cells from burn
When this happens to your skin  Flickr

Information on this website is intended for information purposes only. Nothing is intended to be a substitute for professional medical advice.

DON’T DESPAIR

Our skin is our largest and most important feature – so if you get painful, peeling, dry, itching skin,  during cancer treatment, DON’T think you mustn’t make a fuss.

For those who aren’t having cancer treatment, but have these symptoms – ask if these symptoms could be the result of taking antibiotics, medicinal drugs, etc.

Dermatology (the science of looking after skin) is very badly served in Britain, and far too often there isn’t enough time allocated for patients to discover what causes skin problems, so these are dismissed, or you have to wait months to see a consultant, by which time the condition has driven you nearly mad, or you come off the drugs.  Or doctors blame detergents, pollution, modern life-style or – as in my case “it’s your age”.

DON’T be bullied, or  even think that you are wasting doctor’s time if you have skin problems.   Our skin is our largest organ and needs looking after.

Sadly there are doctors that sniff and murmur “vanity” under their breath when we ask for help.  I came across a horror in my local hospital;  but when I challenged his diagnosis, he swept out defeated.

But it was him and Dr. 30 Second (who didn’t help with my eye problem) that made me start this website – which now has ‘visitors’ from 142 countries – proving that there are others like me who have skin problems!!

So this page is all about nice treatments, well-researched and helpful.  Don’t let nurses put you off.

If you want help with skin problems, don’t let excuses like “we are not allowed to recommend commercial products” put your off.  This is only laziness.  In other countries (with better post-cancer survival rates) it is normal for doctors to prescribe skin products for ‘cancer drug’ skin.  You can ask why is it that the drugs that are possibly causing the problems, are made by the most commercial companies in the world;  if doctors can recommend commercial drugs, then they should be able to recommend commercial products that will help with problems caused by those drugs.

How It all started

About two weeks after starting Tamoxifen, I woke up to find my body was a peeling, bloody mess, covered in lesions.  Cancer side effects had kicked in, and  I really needed a whole lot of advice and TLC.

Peeling off another layer, my (almost never seen) Oncology Nurse said “you do have a problem”, and that was all.  No help from her.

I needed help – fast.  So I went to a Dermatologist – whom I call PD (Pompous Dermatologist).  He was a Professor and in charge at our local Foundation Hospital.  He asked if I minded if he examined me in front of his students – I said I was delighted as I was sure it was drugs that had caused the skin lesions, and therefore students should know the consequences.

After a cursory examination, he told me “it’s your age”.  I started to challenge this – how could my body have erupted with these bloody blisters overnight, if it were age?  I had gone to bed with perfectly normal skin, yet woken up with blood all over me.

He refused to answer – but I could hear the students’ comments, and they were definitely on my side.  He realised this, got up and swept out saying he didn’t have time to answer any more questions.

I since heard that he had treated four friends in exactly the same way.  I HATE BULLIES – and got my own back as I had opted to go privately so I could see him straight away,  and refused to pay his bill.  He never pressed for payment.

After him I went to my private doctor, who spent over an hour talking me through all my symptoms, and eventually put me on a cortisone cream – which cleared everything up – telling me as soon as the skin was healed to come off the cream, start with a good body cream several times a day and go to a Consultant for advice.   I decided to go to France, where I was told they excelled in treating skin problems, but in the meantime would look around for a good body cream.  Having had such a bad experience with a Professor of Dermatology in Britain, I wasn’t going to go back.

What you do

I was lucky – having written articles about skincare, I bombarded the Press Offices of major skincare companies, asking if their research chemists had ever come across cancer skin side effects that might be caused by Tamoxifen.

Back zinged e-mail after e-mail saying they knew all about this.

All the companies mentioned here deserve a big thank you -they saved my skin and helped me stay on drugs.  But I can fully understand and sympathise with the 60% of us who elect to come off these life-prolonging drugs;  after all, who wants painful itching skin day after day, month after month?  With doctors telling you when you ask for help, “its your age”.

But don’t come off drugs – try, try and try recommended skincare products, until you find the one that will sooth and replenish your skin.  And help you stay on the drug.

Doctor’s letter

When I asked companies what they recommended for my skin, quite rightly, none of them would send me anything to help until I could produce a letter from my doctor saying my skin was healed. Once doctors gave me the go-ahead and said I could tolerate creams, etc.

Clinique took over – they make a fabulous Deep Comfort Body Butter. Rubbing that all over my skin three times a day eventually bought my horrible peeling skin under control, and now I only use it once a day (unless I go swimming, and then use again).

I did think I should try to see if the NHS could contribute to the cost, and was given several products to try, including Cetraben and Oilatum Cream; they are OK, but sadly not nearly as effective, so it was back to Clinique!

Daily Routine

Clinique said they were well aware of problems caused by drugs, had developed special creams to help patients and took stands at Dermatology and other medical conferences to tell the medical profession about this – but doctors just weren’t interested. They even have an excellent booklet written for the medical profession which lists every ingredient in their recommended range, so staff can check if anything might produce a reaction to certain drugs.  (I got hold of copies to hand to staff – but they landed in waste paper baskets).

What is it about the British medical profession that it can’t understand that women (and men) today want to keep their skin looking nice? Skin is our largest and one of our most important organs, and if it gets cracked and erupts, this sets up all sorts of problems, not the least germs getting in to the lesions causing havoc.

As I write this, Prof. Sir Magdi Yacoub has written in the The Daily Telegraph “we in the medical profession ……..have to listen more to our patients”.

In France they listen, then you are likely to be prescribed products produced by La Roche Posay (more details in next chapter).  At their medical centre they have a totally different approach, where doctors work WITH the patient, rather than dismissing our concerns.

BME

Sadly, those with dark or black skins tell me they feel left out, and they have even less attention paid to skin problems than we do.  The companies I mention here all make suitable products for BME skin, and their Beauty Consultants (in major stores or chemists) can give advice if you need to use any special creams.

Anthelios (made by La Roche Posay – LRP)  is certainly recommended for people with black skin, those who have vitiligo and is also  for every skin type that is photosensitive or photosensitive as a consequence of photosensitising drugs (chemotherapeutic drugs are known photosensitises).

People with dark or black skin who require camouflage make up post procedure or as a consequence of a skin pathology can use the Unifiance range of make up (available in most countries that stock LRP including Ireland, but not UK, so those in Britain have to order it on the net). They don’t, however, have a range specifically developed for black skin, as Camilla Rummery, their Medical marketing spokeswoman, says “Our range is recommended for all skin colours. We have also done multiethnic studies on the Effaclar range (for acne and oily prone skin) and of course our Lipikar range is suitable for all atopic and dry skin”.

Sadly, when nurses compliment me on my skin, and I start to tell them why it is in such good condition, even though I am on hormonal drugs causing cancer skin side effects – you can see they aren’t paying a blind bit of notice. Their eyes glaze over at the mention of any commercial products – and they live by the NHS mantra “free at the point of delivery”. No matter if you can pay for something that will make your life easier and more comfortable – this dog-in-the-manger attitude is pathetic.

So if you find that nurses just brush aside your questions about what products to use for your skin colour, go to LRP or any of the companies’ Consultants, or go on their websites – you’ll find they are incredibly helpful.

So – unless you are very lucky, if you have peeling skin – blood lesions – itchy skin – etc., it is up to you to sort it out. Or get help from GOOD skincare companies.

Making money

Yes – these companies are in business to make money. But many years ago the major companies realised that if they produced creams that gave customer allergic reactions, consumer groups (particularly in the USA) were so powerful they would be driven out of business by the Courts. So they improved research and development (R & D), employed a whole lot of scientists and doctors who were passionate about skincare – and the result is creams that are almost miracle creams. Not quite – we still can’t believe the ads that promise eternally youthful skin, but if we use good products in the right way, we can do a lot to give ourselves better skin. And women – and men – today realise that good skin makes you feel better.

It is strange that two French and one  US company all launched in Britain in 2008, unless of course they read the Macmillan survey saying we spend so much on ourselves after cancer (upwards of £2,000 – £12,000 pp).

Outdoors

When you go outside, even in winter it makes sense to use a moisturiser of AT LEAST Factor 15 on your face everyday (two lots of Factor 8 are still only Factor 8).

In Summer, the Skin Care Campaign say cancer patients should wear at least Factor 30, and Factor 50 when the sun is bright.

Clarins are another company that takes sun protection very seriously, and make excellent fake tans. They recommend using their exfoliating creams before you apply fake tan for a much more even finish.

And whatever you do – HAVE FUN! I defy anyone to be miserable when there is a gorgeous lavender scent coming from the bathroom, as you slather on a gorgeous cream (and I bet you the men enjoy this too!)

See next posting in this section for more on the Hero Products that help our skin every day.

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Body skin – looking after it

La Roche-Posay
Roche Posay lion fighting for us   Wikipedia

YOUR BODY IS A HUGE  AREA OF SKIN

Shortly after I started on Tamoxifen, I woke up to find my sheets covered in blood, and skin lesions (bloody skin blisters) had broken out overnight all over my body.  So I made an appointment to see PD (Pompous Dermatologist).

Entering his consulting room, he asked if I minded being examined in front of students.  Actually, I was pleased. I am not an exhibitionist, but was certain that Tamoxifen had caused my painful skin outbreak, and wanted to show trainee doctors what drugs could do to us.

Telling me to get undressed, he gave me a cursory examination – probably all of two minutes – then announced “it’s your age”.

I was shocked.  I write about skincare for magazines, and had been on courses run by companies that wanted to explain the science behind the care, so even I knew enough to realise that age problems creep up gradually, not overnight.

So I disputed this diagnosis;  behind me I could sense the students were on my side, and they too were questioning  PD’s diagnosis.

“Go and get dressed”, he told me, and when I returned to his room he had swept out, refusing to answer any more of my questions.  I did have the last laugh though – I had gone privately because I couldn’t afford to wait weeks for an appointment – so told PD’s secretary “don’t you dare send a bill, because I will see him in Court before I pay” – and to her credit she didn’t.

Next I went to see a private GP, who gave me a prescription for strong creams to close up the lesions and help my skin re-grow – then Clinique took over.

Clinique make a fabulous Deep Comfort Body Butter.  Smoothing that all over my skin three times a day eventually bought my horrible peeling skin under control, and now I only use it once a day (unless I go swimming, and then use again after I have dried off).

This is the product I turn to when I want to buy a present for a friend with cancer – and both men and women have said it is fantastic. Clinique make a whole range of products, for men and women, that are researched by their team of doctors, so you will find them mentioned in other pages.

However, I could still feel ‘warts and bumps’ growing occasionally on my skin;  was I doing the right thing for my body?  To make sure this didn’t erupt again, I decided I should seek proper medical advice, and found out that La Roche Posay in France treated over 8,000 patients with skin problems a year – so went off there.

I could have chosen to go to Avene, or St. Gervais – both well-know French medical health spas specialising in skin disorders.

La Roche Posay it was, and arranging an appointment was very easy to do – I actually got the tourist board to make an appointment with a doctor.  I didn’t think PD would supply a referral letter, so if your doctor hasn’t given you one  you need an appointment with a ‘gatekeeper’ doctor, and they refer you on.  I didn’t ask for an English speaking one (wanting to practice my French), but the doctor who met me spoke perfect English.

After examining me, he said “you need to see Dr. Lemoine” and my heart sank at the thought of the wait.  But he lifted up the phone, told me Dr. Lemoine would see me in ten minutes, and he did.

I don’t know what language he spoke; but he examined my skin all over, took swabs, scrapings (not painful) blood samples – all the while grunting away to himself. Then he rang for a nurse, I heard her being told to give me a ‘massage sous l’eau’ and I was wafted off to have a dreamy treatment which got rid of the bumps and left my skin feeling fantastic.

The centre really got going during the war, when it made a name for itself dealing with terrible burns from bombing etc.   And as I wandered from appointment to appointment I could see ‘classes’ going on, with other patients learning how to apply the special cover make-up for which the centre is famous.

Soon I was back with the doctor, who told me that my problems were the result of Tamoxifen, and he had written out a huge prescription for La Roche Posay products.  I found out that these products had all had umpteen clinical trials, and were supplied as part of the French health service.

His nurse took me off, handed out lots and lots of creams and tubes, explained what they were all for – and I was outside – clutching my bag of goodies – and it hadn’t cost me a penny.

Am not sure about French system, but a friend who had a similar experience said she had paid about £90 – which must be the bargain of all times.  But I suspect at the Roche Posay centre they thought that as someone locally had made my booking, I was included in the French system, and hadn’t asked for my papers.

Friends who have stayed with friends who live locally say the same.  But even if I had had to pay – what a fantastic service.  No waiting – one-stop shop – fantastic expert attention and products designed to help cancer skins.  No wonder the French stay on their drugs and live longer.

Incidentally the EHIC card WON’T pay for this.  Sorry!

Back home, when the lovely prescription products were finished, I did think I should try to see if the NHS could contribute to the cost, and was given several products to try, including Cetraben and Oilatum Cream; they are OK, but sadly not nearly as effective.  I have since discovered that La Roche Posay products are sold in UK in  large Boots stores, etc. and of course on the Internet.

The nurse had said it would be a good idea to have a body scrub once a week; the sort with oil in it. It gets rid of rough patches, and feeds your skin, and sets it up to absorb and renew itself.

Elemis Recently I have been put on bisphosphonates (for osteoporosis – probably from Aromasin), and that is a real BxxxxR!  However, Elemis happened to send me a lovely bottle of their Frangipani Monoi Moisture Melt – which arrived just in time to do exactly what the label says – melt into my skin.  Bonviva (the drug I am taking) is particularly vicious, and has managed to destroy my nails (Evonail are working on this at the moment), so anything to counter its effects on body skin has to be strong to be effective, and this Frangipani oil certainly is.

It is an oil, so be careful if you rub it into your feet that you wipe them down before you set off across a polished floor – but the effects are superb.

Elemis, in their quiet way, produce some fantastic skin products, and of course their Spa just behind London’s Bond Street is the top place for superb treatments and massages.  Whatever I try of theirs always seems to hit the right spot, and they really do understand what our skin is going through.

Finders                                                                                                                                                                                                                   Finders makes one of the best body scrubs, called Dead Sea Salt Scrub, and it costs under £10. Another excellent product is their Dead Sea Body Scrub with Frankincense oil (£6.99). The same company also makes Black mud mask soap which is excellent for hand washing (stops drying out hands) (£3.29). www.deadseabathcare.co.uk .

Then in your shower or bath use Finders Heavenly Hydration in your bath or shower, then gently smooth their Skin Softener all over your body (don’t forget the bit around your waist on your back, which often gets very dry). This product is excellent for an emergency ‘repair’ when your skin is really dry, or it reacts when you are put on a new drug.

However, do wipe your feet before you step on a polished floor, otherwise the cream may not have soaked in – and you will slide all over the place!.  These products do what the name says on the package, and keep your skin soft,, smooth and – most important – healthy.  I can’t understand how Finders manage to keep prices down, and still produce some of the best bath and moisturiser ranges – but they do.

When you start on drugs your skin may be so dry that you will need to use a body moisturiser at least twice a day, and if you go swimming use it again after you come out of the water.

In the bad old days perfumes were often harsh, and destroyed the body’s defence mechanism.  Today, this has changed, and although many people like to use an unperfumed product, I love a bit of glamour, and find if I use a good product I can smell gorgeous without having any problems, and this gives me a lift!

iS Clinical If you prefer to go to America, or like American products that have been discovered and used by their celebrities!  Then look for iS Clinical.

This range of skincare products is available from top Harley Street dermatologists, or on the web.  Four years in the making at Washington Cancer Center, it has had every trial you can think of – but as NICE said it had to have more trials in Britain,  you have go to looking for it, rather than have our local hospitals prescribe this incredibly helpful range.  It makes me sick – how can NICE be so arrogant, when the US has a far better record for treating cancer – it beggars belief.

They make excellent products for body skin care, and are always putting out new ones.

Dr. Bragi.                                                                                                                                                                                                                          And if I have had an extra dose of pills – such as antibiotics that seem to be the standard treatment for just about everything today,  I reach for products developed by Dr. Bragi. He comes from Iceland – and started to use his research to develop products using marine enzymes – plenty of them in Iceland.  These products act like a serum, and I use the Face and Body Salvation (does what it says on the label) when I can feel those rough patches developing as a side-effect from antibiotics.

I spray this all over my body, and can use it on my face as well.  It sinks in, and really gets the skin back on track.I don’t begin to understand it works – but the crystal-clear pump action bottles come with a warning.  They are sensitive to lipid-based products, so wait at least 15 minutes before applying any other cream or lotion on top.   www.drbragi.com

Products I have mentioned are fairly expensive – but if you spend £80 on a pair of trainers, doesn’t your skin deserve the same attention?  Our body skin is vitally important, and yet there is so much of it to protect it can be an expensive exercise.

Floris I love the lightly perfumed bath gels, cleansers and gentle body lotion made by Floris.  Founded in 1730, Floris products were good enough for Florence Nightingale. So what’s good enough for one of my heroines is good enough for me.  Today, the company is run by the eighth generation of the family, and walking into their shop at 83, Jermyn Street, you are still given the same ‘old-fashioned’ service.

Floris make a range of sweet smelling products that don’t dry the skin, and are gentle.  Not only that, but they also support the Cancerkin centre – so are well worth supporting themselves.

I had a marvellous friend who, knowing I loved jasmine, used to give me Floris products in their Jasmine range, including Body cream, and other bath products in same range.   They also make ranges smelling of Roses, Lavender, Lily of the Valley, etc. and the evocative Edwardian bouquet.

When advised by a doctor that I needed to ‘bombard’ my skin with something extra strong, I used Floris’ scents to add to almond oil to make this smell nicer.  However, you won’t find this type of product made commercially, as you have to be very, very careful.  Firstly because it is so sticky it can be dangerous walking, and secondly it takes time for the oil to be absorbed into your skin, so you have to be careful what you touch and where you sit!  But it is as useful remedy when drugs make your skin scaly.

Incidentally Floris also make a perfumed Hand Wash, which is a good idea as it doesn’t dry out hands, unlike soap.  www.florislondon.com

Perfume What seems strange to me is that we pay homage to the science of Aromatherapy – as its name suggests, ‘therapy with scent’ – but shy from any product with a scent.  Once I could have understood this.  There were some shocking chemically-made scents used in products to make them smell better, but today the gentle aromatherapy basics such as rose, lavender, jasmine etc. not only lift the spirits, but make you feel better.

Bronnley are one company that use floral scents, and, they have come up with a Forever Rose Collection, that gives a donation to Breast Cancer Campaign.

Not only do the products smell gorgeous, but 10% from the sale of each product will be donated to the charity. There are Heart Shaped Soaps, with Shea butter, a Rose Eau De Parfum, Soothing Bath & Shower Gel and luscious Body Lotion.

The Bath & Shower Gel contains Witch Hazel Extract for soothing skin protection, and the Body Lotion is enriched with Evening Primrose Oil. Incidentally, rose scent is a well-known aphrodisiac, traditionally associated with Venus – the goddess of love and beauty!

http://www.bronnley.co.uk.

Incidentally, Bronnley was founded in 1883 by Jimmy Bronnley and is one of the last solely British owned firms in its category. Breast Cancer Campaign’s mission is to beat breast cancer by funding innovative world-class research to understand how breast cancer develops, leading to improved diagnosis, treatment, prevention and cure. Over 45,500 women are diagnosed with breast cancer in the UK every year. Thanks to ongoing research, survival rates are improving and on average 80% of women diagnosed today will be alive in five years time. Prices are Eau De Parfum 7.5ml £10.95; Forever Rose Luxury Soap (100g) £3.50; Forever Rose Moisturising Lotion (500ml) £6.95 and Bath & Shower Gel (500ml) £6.95

Hydrating Baths When skin is really dry, one of the best hydrating baths I have discovered is Moor Hydrating Herbal Bath. The makers say it is made up from hundreds of herbs and minerals, but the most interesting thing is that it contains black mineral mud, that turns the water black. I first had a mud bath at Klinik Bad Sulza, in Germany, and couldn’t believe how this thick gungy stuff could make my skin so soft – but it does.

Moor Bath has the same effect, you just have to be careful how you pour it into the bath, because the liquid is black. It washes off, but you don’t want to be mopping up splashes afterwards!

At least once a week I pour this into a warm (not hot) bath, lie back and relax, then pat myself dry afterwards – and end up with lovely soft skin. A large 500 ml bottle is £11.95, so it’s not an expensive treat. www.moorspa.co.uk

Barefoot Botanicals Homeopaths Jonathan Stallick and Hilery Dorrian have created Barefoot Botanicals to help people with problem skins, and they have a Rosa Fina body lotion using Rosa Mosqueta Oil from Chile.  I mention their range elsewhere, as I am a great fan of their wonderful products.

Live Native If you are vegan, or just want to use shea butter but don’t want to have to warm it up, you would love Live Native’s Essential Woman organic body food, made on the Isle of Skye. I heard about it from a friend, liked it when I tried some, and wrote to Vicky Ewbank to ask if it had any uses for post cancer patients?

Her reply shows that people really do want to help: “as yet we have done no specific testing – it is something I would like to do. Funnily enough we did have a good chat with a Macmillan nurse just last week about the suitability of our Skin Foods for cancer patients – her attraction was more the freshness and purity of our creams, helping to lighten the toxic load on her patients.

“As I mentioned to you earlier, I would love to begin collecting anecdotal evidence of the successful use of our Skin Foods. It will help us considerably in launching and promoting our range. I myself am a homoeopath, nutritionist and living-foods coach, and developed the Skin Foods from my own knowledge and understanding of the inherent healing properties of the living ingredients. But, as yet, our company and resources are still in the ‘sprouting phase’ and conducting clinical trials is a little beyond our means just now. However, with the support of enthusiastic and aware campaigners like yourself, I’m sure that in the not too distant future we can really begin to explore all the benefits that living Skin Foods confer – to many skin suffers. ” (Not neglecting the immense benefits of good food, drink and company of course!)

What a sensible woman!

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