Tag Archives: London

Sunflowers make patients happy

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Cancer Patients grow Sunflowers

 

Sunflowers for my mother

Happy Sunflowers  (yksin)

Patients at Ealing Hospital in West London have taken to raising Sunflowers, and selling them in aid of funds.

 

Last time they did this they sold out all their sunflower plants on a group awareness, breast awareness day.

Selling at the main entrance of Ealing Hospital, they raised £82 and sold 50-60 plants.  Patients had planted and looked after these  since May at the West London Mental Health Horticultural Centre,  near the hospital.

Christina Papadopoulou, Macmillan BCN at Ealing Hospital says, “Mental health patients very kindly looked after and watered our plants, and if it wasn`t for the weather we could have done much better!”

Support from Macmillan

This is such a marvellous idea, and Christina says if other patients wish to copy this innovative scheme, the group was granted £500 from Macmillan which will help towards covering the expenses of many of the activities. Macmillan will support this initiative and will help the group access grants, training, advice and information to help it grow and develop to meet the diverse needs of patients in the area.

The group in Ealing has decided that the sunflower will be its logo. “This is because these flowers turn their heads to the sun and with a sense of brightness and warmth that sunflowers naturally impart they generate sentiments of cheerfulness, optimism and get well thoughts.”

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Lesson to be learnt from Queen's Jubilee

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Sip water – and take a ‘comfort break’

English: Prince Philip, Duke of Edinburgh, hus...

 

Everyone was sad when HRH Duke of Edinburgh was taken ill during the Jubilee celebrations, and felt for HM The Queen when he wasn’t at her side during  the Royal Pop Concert.

Ever a devoted Consort, it is seldom that he isn’t there when she needs support, and the day before he had stood stoically by her side in the pouring rain for four hours, scorning the thrones supplied for them to rest on.

Be warned!

Anyone undertaking the same schedule MUST have regular sips of water, and go to the loo.  Dehydration is bad for anyone;  but worse for the elderly.

It is more than likely that the Duke could have been dehydrated;  certainly standing for four hours is not the ideal thing to do at 86, let alone 90, so we were lucky that The Queen looks to be healthy.

What might have happened
Both The Queen and her husband stood stoically for four hours, and didn’t take a sip of water, let alone nip down to the loo as far as one could see.  This is not good for anyone, let alone two OAPs, and although we know Prince Philip would have scorned any medical advice, The Queen is always keen to set a good example.  So if the planners had built in a short stop she would surely have taken advantage.

Appoint a Footman
Although the Palace is in to austerity, surely it is time The Queen appointed a Footman of the Silver Salver, whose duty would be to present the Royal OAPs with a glass of water every hour or so?  In this Jubilee year, couldn’t Parliament vote to be less greedy, and allow Her Majesty to increase her allowance enough to pay for an extra footman, particularly if it is giving work to an unemployed youngster?

Obviously he/she could be given other duties, including searching out a discreet loo, but it would help to keep this incredible couple healthy.

Mind you, knowing what the Duke thinks of pop music, I reckon he was far better off in King Edward’s Hospital.  Anyone who has ever been treated there will know what I mean;  if you haven’t – it is run by a Matron – enough said..

 

Health Bill cut backs can be challenged

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PCT decisions are NOT final

 

 

 

 

 

 

The Royal Marsden Hospital Pain Clinic was quite definite:  I needed a course of 22 Manual Lymphatic Drainage treatments for my swollen limbs.

They had tried the ‘usual’ bandaging, raising limbs (who can do that today?), cut out all salt etc., etc. and nothing worked.  At times I just wanted to get a Stanley knife and plunge it into my swollen skin.

So I went to see my GP to ask them to get authorisation for this exceptional spending, by applying to my local PCT (Primary Care Trust).   They were reluctant to do this, trying every means of sending me backwards and forwards to the Marsden’s Lymphoedema nurses. Eventually, they very nicely said they had told me and told me they couldn’t do anything;  probably because I had other problems that might have been caused by the fact I had had polio, and side effects from cancer drugs had given me such dry skin that wearing tight support hose was painful.

After having kept on and on all last Autumn, asking when I might receive an answer, I received a copy of their reply to my GP at the beginning of April.  My heart sank.

The panel made a unanimous decision to decline funding on the grounds of existing commissioning services available.  

In reaching its decision, the panel followed its ethical decision making framework as well as the evidence you provided in support of the patient’s exceptional circumstances.

No mention of where and how I could obtain these ‘existing commissioning services’.  I knew these did not exist, so someone was prepared to write about a non-existent service to get out of funding treatment.  This needed a lot of thought, as I plotted what to do next.

In London we are finding we are becoming victims of the ‘post-code’ lottery, particularly when it comes to Lymphoedema services.  So I decided that first thing to do was find out what are existing commissioning services available. 

Then things started to get interesting.

Reply

For the next week the PCT and I played a game.  I would phone to ask what services were available.  Was told that the ‘ethical’ panel had said that these services were available in my part of London.  I knew that there was one service sometimes available to patients, in a far area of North London, which was vastly over-subscribed. But nothing else.

Several phone calls later, I discovered that this panel had been listening to rumours, and without any justification, had taken these as fact.  I kept on phoning to ask where was the service? whom did I contact?  How did I join it?

The PCT kept on saying “we’ll call you back”.

But never did.

When I would call back to speak to the original person – who hadn’t bothered to call back – I was constantly told “they are in meetings”.

Gradually I teased out the ‘facts’ on which the ‘ethical’ members of the panel had based their judgement.  The service had been talked about, according to nurses at the hospital.  Someone was going to start this, but had left again.  There were rumours that the hospital were about to interview a therapist.

I went to see nurses, receptionists and admin. at the hospital.  Was either met with a blank face, or a nurse telling me they had thought about it ..but …..

All these rumours had formed the basis for the ethical panel members unanimous decision to turn down my application. !!!!!

Blowing my top

Eventually, being sure in my own mind that this service definitely didn’t exist, I started to phone the PCT to speak to the person who had signed the letter.  Surprise, surprise.  Again, she was constantly ‘in a meeting’, but would phone me back.

So I would wait – and then phone back.  She was still in meetings;  this must have been the longest in history.

After a week I blew my top.  And started to mention that I was going to contact my MEP in Brussels.

I knew it was no good approaching any Conservative or Lib Dem MP (even though ours is a very good one) because they have to toe the party line when it comes to Health.

But MEPs – that was a different kettle of fish.  But I didn’t have time to Google ‘Your MEP’ before I was phoned by the official who had been in meetings all week, and told that my application had been approved.

And I am off this week for my first treatment.

Who else can help?

The MedLaw website  is a self help tool for patients to make applications and appeals for NHS funding for treatment. Information and guidance is provided on the processes to follow, the forms to complete, the evidence required and on the law.  It is written clearly, easy to understand, with a lot of sensible advice.

As they say, “many treatments are not routinely funded by the NHS and these include newer treatments for rare cancers, rare disease, and surgery. Consultants and GP on behalf of patients now have to make applications and appeals for funding under what is known as the Individual Funding Request (“IFR”) process.

For cancer patients, the Interim Cancer Drugs Fund acts as a “back stop” so you can apply to them for further funding for cancer drugs only once you have exhausted the application and appeal process”.

www.medlaw.eu

Enhanced by ZemantaMoral of the story. 
  • Be sure of your facts
  • Then challenge the PCT.
But suppose I had been an OAP who wouldn’t know how to challenge the PCT?
And why was it that my GP had allowed the PCT to write this letter, and not challenged it?                                                             They should know what cancerservices are available locally – but don’t

The Aladdin's cave at the top of Harrods

Wig heaven 

 

Anyone who has cancer knows the puffed-up blobby feeling you get as a side effect from drugs.  You look in the mirror, and all you can see is a lumpy face and blotchy skin.

And if you need a wig, NOTHING looks good. You end up in a cupboard, trying to see what different wigs look like on you in a tiny mirror.  Or worse, the nurse shows you a small selection, tells you to choose, but won’t allow you to try one on.

So you give up in despair.

Unless you are lucky enough like me to be let loose in Urban Retreat, at the top of Harrods!

And this photo shows you the end result of my visit to Aladdin’s cave when I visited.  Normally I hate my photo – I have lost all idea of glamour whilst undergoing treatment, but I was so delighted with the end result that I went round the corner with my new wig and had Siyrah at Daniel Sandler give me a professional make-up, all ready for a party that evening.

Then when I arrived at the party everyone said how well I looked!

Urban Retreat knows how to treat us

I met the girls from Urban Retreat at the Kensington and Chelsea LINk Wellbeing Event, and Pamela Roberts persuaded me to come to Harrods and see what they could do for me.   I was feeling decidedly non-glamorous, so thought I would try on a few wigs and then make my escape.

Two hours later I floated out, and could actually enjoy looking at myself in the mirror.

Talking about their wig boutique, Pamela says, “from the beginning we have tried to provide the most innovative techniques, progressive therapies, excellent customer service, and worlds’ finest salon brands”, at the same time as offering a sympathetic and helpful attitude to those of us who are less than perfect.

She told me that they are gradually increasing what they can offer at Urban Retreat, from a MinX manicure, a luxurious Crème de La Mer Ultimate Experience, a Daniel Sandler evening makeup, and a ‘new kid on the block’, Antonia Burrell skincare.

Vikki Ullah Wigs

After experience working in the industry, Vikki  started her own wig business. She wanted to ensure that at the core of her business was a nurturing environment, where clients who had lost or were losing their hair for medical reasons, could feel at ease and positive about changes in their life.

At the same time she was intent on dragging wigs from their dusty, old-fashioned image into their rightful place at the forefront of glamour.

Talking over hair problems, I find that different NHS areas have different rules about funding wigs.  Annabelle and Pamela say some will allow a voucher for £60 which can go towards the cost of a wig.  Others won’t allow patients to top up the cost – you have to find a wig that sells for £60 (I have seen these and no wonder they lie are never worn) and that’s it.  It doesn’t surprise me many fellow patients never bother to take their wig out of the box.

If you can actually get your GP to apply to Macmillan on your behalf, you have to go through the GP to get the voucher – but Macmillan say you aren’t allowed to apply yourself.  So with many GPs your application waits at the bottom of the pile and you wait and you wait.  With GPs dependent on a patheric QOF allocation of funds to pay for ‘handling’ cancer patients, it’s not surprising that we are pushed to the back of the queue when our letters go out.

So being an action-kid, I get on to Macmillan, and have suggested that we all work together to get the Dept. Health/NHS to give guide-lines for wigs that are the same across the country, and patient-friendly.  And surely it should be the patient who applies for the wig?

Cost

Annabelle spent ages fitting me with different designs, then we finally settled on a gamin style that really made me feel super glamorous.  The one I chose was one of the more expensive, selling at £198, but they ranged in price from £100 to £200.

Make-up

A glamorous wig deserved proper make-up, so I skipped around the Retreat, looking for someone to give me a make-over to go with my glamorous hair, and Syrah of Daniel Sandler made me feel and look fantastic.  I had been using old-fashioned blue eye shadow, but she showed me how a combination of beige and brown was more up-to-date, and opened up my eyes so you could see them.

A very light touch with foundation and blusher, lots of gorgeous mascara (which she was careful not to get near my eyes) and finally a reallyglamorous reddish lipstick – and I was laughing I was so pleased.  A friend was getting married, and I discovered Syrah also goes out to do special make-ups,  so am going to suggest that she asks for her to do her make-up for her wedding day.

Skincare

Then I was introduced to Antonia Burrell.  She has just developed her own, very small skincare line, and was there amongst all the ‘big boys’ as Urban Retreat knew she had something to offer

Antonia showed me a product that seemed tailor-made for problem skin:  the worlds first 100% natural, emulsifying Cleansing Oil! Refreshing, luxurious and water-soluble, this glorious fresh, zesty oil cleanser transforms into a consistency of a milk. Infused with Cypress and Petitgrain, it heals, brightens and purifies the skin while calming and soothing irritation. Natural glow also respects the natural pH of the skin and does not strip or dry out the skin after cleansing, and helps protect skin from free-radical damage, which also causes accelerated skin ageing, and gives you the deepest, most luxurious cleanse yet.  I bought a bottle home, and am so glad I did as it is turning into a Hero Product. info@antoniaburrell.com

 

Macmillan Information

Macmillan say they are going to revise this information on wigs this year – and about time!

They say you may qualify for free wigs or fabric supports if:

  • you are under 16, or under 19 and in full-time education
  • you are included in an award of:  Income Support; the guarantee credit of Pension Credit; income-based Jobseeker’s Allowance; income-related Employment and Support Allowance; Working Tax Credit with a disability element; or Child Tax Credit and your income for tax credit purposes is £15,276 or less
  •  you receive a War Disablement Pension and need the items for your war disability
  •  you are a hospital inpatient when the wig or fabric support is supplied
  • your weekly income is low enough (see details of the Low Income Scheme)

Wigs and fabric supports in Wales and Scotland are free for everyone.

The HM Revenue and Customs National Advice Service can tell you how to claim back VAT on wigs and other items related to your treatment. Phone them on 0845 010 9000 or see hmrc.gov.uk.

You will need to tell the person who fits your wig or fabric support that you can get it free. You will need to show proof that you qualify, for example, the letter showing which benefits you receive.

So there is plenty there to get sorted out!  So everone can get a wig if they need it.  It shouldn’t depend on factors such as where you live.

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Organic Pharmacy

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Local Pharmacy goes worldwide

 Sharon and Ewa ‘man’ their stand at Wellbeing Event.

In the Goody Bags was a sample Double Rose Rejuvenating Face Cream, made by the Organic Pharmacy.

About ten years ago, a local Pharmacist opened The Organic Pharmacy on King’s Road. As a mother of two, an entrepreneur and a wife she knew how important it is to strike a balance in life, and The Organic Pharmacy was “an extension of my own life and that of my family”.

The Organic Pharmacies spread slowly across London, each one a lovely white, clean and sparkling space;   a shopping haven free from chemicals found in other stores, a place where expert knowledge on well being, herbs and homeopathic remedies were readily available.

Principles were very simple, the best organic ingredients, honest expert advice, quality service, incredibly effective products and a caring environment.

In 2008 they opened their first store in Los Angeles, with same aims as the London outlets:  to bring you the best products, advice and treatments free from all the toxic ingredients commonly found in mainstream cosmetics and health products. ­From our herbal and homeopathic dispensary we custom blend herbs and homeopathic remedies to suit your needs.  Expert advice from our qualified professional team means you are able to fulfill all your health and beauty needs.

Demonstration

Staff from the Organic Pharmacy were kept busy at the Wellbeing Event, answering questions on their stand, and Ewa Macur gave a fascinating talk about the products they offer, and why it is so important to look after our skin.

Whether we suffer from breast cancer, skin allergies and sensitivities or wanted to optimise care for skin and health, the staff were giving an informed talk about the various suitable options.  They  encouraged all their  our customers to ask as many questions as they need to, “and we are there to support you every step of the way”.

“We hope that we have shown the world it is possible to choose an organic product that is beautiful to look at, luxurious to use and more effective than its synthetic counterparts without compromising your health or beauty”.

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Is Lansley deaf?

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SAVE THE NHS

 

The National Health Service Norfolk and Norwic...

Image via Wikipedia

 

We have all tried to tell Lansley he is going about NHS reforms using a sledge hammer that is out of control – but he doesn’t  seem to be listening.

LaLa wanders around with a smug smile on his face, but when brave campaigners have tried to put their point across, he just pushes past without paying any attention.

Two years ago, I was one who said that the NHS needed to save money, and welcomed the idea of reform.  One only had to step over the doorstep of almost any NHS centre to realise that joined-up thinking was often lacking, and stupid rules and regulations were costing money.

BUT – living in London, I began to realise that the Post Code Lottery is rife;  ‘new’ ways of saving money are designed to save money for a NHS centre, but not for the service overall, GPs are sitting on referral letters – I went to mine for a referral in August;  in October I asked what was happening and was asked, “do you still want it?”.  The referral was finally sent off on January 25th.

So there is ONE FINAL petition that you might like to sign.  It doesn’t cost anything – and might be the proverbial straw – miracles sometimes happen!

http://secure.38degrees.org.uk/NHS-petition

Yoga in the Park in London

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London’s

Hyde Park 


hosts Yoga

 

 

Studies in USA, Britain and all over world point to benefits of Yoga for cancer patients, and now Yeotown Radiant Health Retreat has teamed up with The Royal Parks Foundation to launch

Yeo London! Let’s Yoga!

They will host a year long campaign of yoga classes and events.

This will be the first event of many during the year, culminating in the biggest yoga class the UK has ever seen on June 24th 2012.

It’s expected 5,000 ‘yogis’ will descendg upon London just before the beginning of the Olympics.

When is first session?

October 22nd 2pm – 5 pm

After two successful outdoor classes in Summer 2011, the next Yeo London! Let’s Yoga! event will take place inside the beautiful new eco-friendly Isis Education Centre at the LookOut in London’s Hyde Park.

The LookOut has the cleanest air in central London, and this workshop will be in celebration of the opening of the centre, where thousands of city children will learn about the natural world from pond-dipping and mini-beast safaris, to bat walks and wild food and cooking. Proceeds of the event will go to support gardening tools, a weather station and other vital equipment for school visits.

Cost:  £15 per person

Register online

Website: www.yeolondon.com

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How to have fabulous massage without paying the earth

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Image representing Wahanda as depicted in Crun...
Image via CrunchBase

Massage is good for you post cancer

In Europe, massage is accepted as part of the deal to help you recover from cancer.  In some countries you can even get treatments on their health service, and every oncologist expects you to have this included as part of your recovery programme, for as long as you are on hormonal drugs.

Even in Britain, where the parsimonious NHS wouldn’t dream of advocating anything so nice as part of a medical recovery programme, a Macmillan survey proved that massage is good for you.

If you are lucky you can get some massages for free offered by charities – then you are on your own, and have to pay from £50 – £90 each time you want a treatment.

Once you have realised the benefits of massage – helping you relax, possibly sleep better, and definitely improve  ‘drug-stressed’ skin, most of us just coudn’t face the cost, even though we knew the benefits.  Until along came Wahanda.

Wahanda is like a free club, whose members gain benefits with low-cost treatments.  Once you sign up, you receive almost daily emails with the latest offers, known as MobDeals, which range from massage to spa breaks, and all at a much lower price than if you walked in off the street.  And these aren’t only in London – they have deals all over the UK:  Bristol, Cardiff, Glasgow, Manchester, Birmingham, etc.  See www.wahanda.com for more deals.

What’s it like to have a MobDeal?

Into my Inbox popped the Wahanda Newsletter with a deal for £20.  If I paid Wahanda this by credit card, I would get a massage, hair treatment for my horrible dry hair, manicure and pedicure.  This seemed too good to be true, but I paid up, printed out the voucher that came back, and made an appointment with Kuno Tierra Boutique Urban Spa.  They have two spas, one in Mayfair, but I chose the one in King’s Road, Chelsea.

Stepping inside the salon, I was greated by Laureen, French – and professional to her finger-tips  She showed me into a treatment room, and proceeded to give me a fantastic Back, Neck and Shoulder massage.  Whenever I have a good massage, this helps restore my energy levels – and boy, I have been zinging around ever since.  Laureen was incredibly relaxing yet thorough, and at no time did I feel I was getting something on the cheap – all the time I was pampered and cosseted.  Bliss.

Eventually I had to snap out of my trance, and Laureen then gave me an excellent pedicure, and a manicure.  Well, my split ‘druggie’ nails are a sore test of any manicure – but with this one the polish stayed on my finger nails for six days – twice as long as normal.

After my hair treatment, I was offered a wash and blow dry for £25 – and I would have done anything to stay around in the atmosphere, so I went upstairs to Lockonego, the sister hairdressers, and Sophie gave me a fantastic hair-do.

I knew I would be back, and found that once a customer, you get offered fantastijiuuc deals:  the current one is for three Express treatments from the menu of Facial, Manicure, Pedicure, Nourishing Hand and Feet Treatment, the massage I had – and beauty treatments including Spray Tanning and Body Polish.  Cost for three treatments is £60.

Tel: 020 7795-1798   www.Lockonego.com

And if you sign up to Wahanda’s newsletter, telling you about MoibDeals, they have kindly said if you buy anything, you can have £5 off your first purchase.  http://www.wahanda.com/mobdeal/uk/

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Simple cooking for the way we are

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Mini-meals made easy

Many cooks making light work

Want to make mini-meals for yourself to see you through treatment days?

- Or you are the kind person who makes up little goodie-bags for friends in hospital

- Or you want to throw a party but hate making all those fiddly eats?

The KITCHEN at Parsons Green, in London’s fashionable Fulham,  has the answer.  It  runs fun courses giving easy lessons on making the food that will go down a treat – one super helpful one is called a CANAPE MASTER CLASS – with a twist.

Given by rugby-fan and Michelin Star chef Thierry Laborde from Brittan, he was a pupil of the legendary Alain Ducasse.  I found the twist came with Thierry’s attitude to a crass amateur like myself.  He was incredibly helpful if I mentioned that some ingredients weren’t a good idea – smoked fish could be a no-no for instance if on chemo – so he recommended “leave it out – the recipe won’t mind” .

Don’t think Thierry is all pompous and ‘cheffie’.  There wasn’t one four or five-letter word, he talked to us and gave us superb tips as part of his talk, and agreed that some farmers are taking the mickey out of customers with the way they load prices just because the food is organic.

Classes are 3 – 8  ‘students’ , and range from 3-year old kids to catering professionals who come to learn tips from Thierry.  The one thing they have in common is they are FUN.

And you learn!  Starting on our first Canape, Quails Eggs and Celeriac Remoulade, within a minute Thierry had told us to peel the eggs (boiled for two minutes) and pop them in to malt vinegar for two hours.  When they come out they are simple to peel.  So if you don’t like the thin membrame that surrounds a Quails Egg – this is the easy way to        get rid of it.This is how you do it!

Already around the table we were becoming neater with our chopping, and Thierry hadn’t    finished with the helpful advice.  Don’t bother to make fiddly little pastry cases – most good delicatessens or Waitrose sell them, but make sure they are the savoury ones as there are also sweet pastry cases.

Fish cakes are always popular, and Thierry’s advice was to boil the freshest fish in milk – leave it to one side to continue cooking, and then we had lovely moist fish to make our cakes.  But the potato should be dry.  Combine the ingredients with parsley, leek if you want a veg, and form fish cakes.  Dip these gently in flour, then beaten egg, then breadcrumbs (he uses Japanese ones).  Cook them in a lightly oiled frying pan until golden brown, freeze when cold, then take out and finish in a pre-heated oven at 180° for 5 minutes. This also makes marvellous meals for kids, who don’t notice the fish cakes are healthy!

More and more lovely Canapés were produced, with simple instructions;  these could be frozen, even a wonderful easy-meal of Croque Monsieur which would make a hearty snack, and a little tray of these goodies would make tasty treats to take to someone undergoing treatment at home, or if a friend is in hospital.

Thierry worked at many of the top restaurants here and in Europe, and organises different cooking sessions:

  • Kids’ clubs
  • Make-aways where you get to make a special dish and take it away
  • Master Classes
  • etc.

He has a sensible and practical attitude to cooking, saying, “if you have to put on weight, put on weight properly”, as he advised us to scrape butter over the outside of Croque Monsieur, to give it “a lovely golden colour”.  But he is very slim, so obviously eating well doesn’t necessarily make you fat.

All the sessions are priced at £89 per person, and the washing up is done by willing minions! and you get all the canapes you made packed in special boxes to take home.

http://www.visitthekitchen.com

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KPD K-9 breast cancer survivor to retire

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Dogs can get cancer too – and return to work, as this K-9 Tasja shows.

To those in the know, what is even more remarkable about Tasja’s story is her age.  The world’s oldest canine police force was founded in Belgium, around 1899.  A crime wave hit the Belgian town of Gent, and the Police Commissioner, van Waesamaal, asked for more policemen.  As is common with all Town Councils, they pleaded poverty;  “if you can’t give me men, give me dogs”, he replied.

The canine policemen were so successful at ridding the town of criminals that other policeforces soon copied Gent, and today descendants of the original Belgian Shepherd dogs:  Malinois mostly, but also Laekenois, Groenendals and  Bouviers, took to the streets.

But around the world, police dog work is very taxing and tiring on dogs – so most in the London’s Metropolitan Police force (one of largest in the world), generally retire when they are around 8 – 8 1/2 years old.  Sheepdogs and avalanche dogs are more likely to carry on working until ten – due to less wear and tear on their muscles, ligaments and joints.

So for Tasja to continue on for so long is a tribute to careful ownership, watching her diet, and lots of exercise.

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